/Advocacy

Dr Susie Gronski: How One Artist Used Her Hurting Strings To Stitch Back Her Life

By |2017-04-23T12:20:04+10:00April 23rd, 2017|Advocacy, Blog, News, Online|

I can't recommend Dr Susie highly enough. I wish I had online physical therapy advice when I felt lost, unable to commute and in need of someone who could understand my pain experience. Dr Susie really gets pelvic health issues [...]

ADF campaign: Losing Yourself in Pain Medication

By |2017-12-11T09:16:54+10:00March 12th, 2017|About, Advocacy, Blog, My treatment, Online|

The Alcohol & Drug Foundation (ADF) has been working to enhance awareness about the way Australians consume pain killers. My understanding of the campaign is that the ADF in no way suggests pain killers are not necessary - many Australians require their [...]

My interview with the ABC 7:30 report

By |2017-12-11T13:42:08+10:00September 29th, 2016|Advocacy, Help, Professional, Television|

(View the story online http://www.abc.net.au/7.30/content/2016/s4547621.htm) Tune in tonight for my interview in regard to navigating practitioners with a chronic illness. On the ABC's 7:30 report (yes, on ABC at 7:30) Patient's have a voice and patient's can help other patients [...]

I’m part of Bridge For Pelvic Pain’s Advisory Committee

By |2017-12-11T16:33:38+10:00April 18th, 2015|About, Advocacy, Living|

And I'm most honoured! To be recognised for my pelvic pain advocacy is one very exciting aspect, but to be invited to be part of a committee with a global vision, is quite an additional excitement. It appears my pain experience will definitely make a difference to others.

Pelvic Pain Foundation of Australia’s Melbourne launch

By |2017-12-11T15:12:07+10:00March 25th, 2015|Advocacy, Blog, Help, Professional|

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA)'s Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014. I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I've 'e-met' many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN. Needless to say, last night I went on a magic carpet ride!

Intermission, my solo exhibition in Hobart

By |2017-12-11T16:35:05+10:00February 27th, 2015|About, Blog, Creativity, Events, Feature|

It’s my PN anniversary, eight years (if I don’t subtract the 4.5 years it took me to find out it was in fact PN)! Obviously time brings on reflection which in turn invites the ‘melancholies’ (yes, I did just make [...]

Melbourne Leader story, Soula bares soul over pain

By |2017-12-11T15:09:55+10:00December 5th, 2014|Advocacy, Print|

The following story was published in support of the current National campaign: Nerve Pain is Different. Please help us raise awareness for those with debilitating invisible pain. If you think you have nerve pain, talk to your doctor and visit [...]

National campaign: nerve pain is different

By |2017-12-11T09:23:05+10:00November 13th, 2014|Advocacy, Events, Learn, Professional Resources|

Celebrity chef Ben O’Donoghue shares his story of living with nerve pain as he becomes the ambassador of a new health awareness campaign called Share Your Pain, which launches today to coincide with the beginning of the Global Year Against Neuropathic Pain². “Share Your Pain aims to increase understanding that nerve pain feels different,” Ben said.