Devastating about Lady Gaga. Chronic pain does not discriminate. It’s not the way I’d prefer people to be educated. I would never want anyone to endure chronic pain but with news of Gaga’s cancelled tour people might believe that invisible pain can be this debilitating. It can leave you hospitalised and/or change your life so [...]
(Moonee Valley Leader, Wednesday, September 6, 2017 Story by Carmel Green) “We’re such a pill-popping nation – we’re taught to reach for the tablet and soldier on” CONSCIOUS of her posture and sitting down for too long, artist Soula Mantalvanos would perch on a fit ball while working at [...]
I can't recommend Dr Susie highly enough. I wish I had online physical therapy advice when I felt lost, unable to commute and in need of someone who could understand my pain experience. Dr Susie really gets pelvic health issues and especially for males - oh hoorah, finally someone to help the boys! Don't hesitate [...]
The Alcohol & Drug Foundation (ADF) has been working to enhance awareness about the way Australians consume pain killers. My understanding of the campaign is that the ADF in no way suggests pain killers are not necessary - many Australians require their medication to manage their health issues - but patients should investigate other options and be [...]
Soula became dependent. "I shrunk as a person. The medication fogged my mind. I couldn't cross the road. I had to activate spell check on my phone. I didn't have the ability to think properly any more," she said.
(View the story online http://www.abc.net.au/7.30/content/2016/s4547621.htm) Tune in tonight for my interview in regard to navigating practitioners with a chronic illness. On the ABC's 7:30 report (yes, on ABC at 7:30) Patient's have a voice and patient's can help other patients by reviewing the professionals (and not!) whom they've seen. Best of all, patients can do [...]
Though doctors and specialists can confirm that he is indeed gravely ill, the fact that Dan doesn’t display any outward signs of sickness works against him, and a faceless assessor declares him fit to work.
And I'm most honoured! To be recognised for my pelvic pain advocacy is one very exciting aspect, but to be invited to be part of a committee with a global vision, is quite an additional excitement. It appears my pain experience will definitely make a difference to others.
I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA)'s Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014. I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I've 'e-met' many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN. Needless to say, last night I went on a magic carpet ride!
It’s my PN anniversary, eight years (if I don’t subtract the 4.5 years it took me to find out it was in fact PN)! Obviously time brings on reflection which in turn invites the ‘melancholies’ (yes, I did just make up a word). But I have significant reason to bury the ‘melancholies’ this year with [...]