July 4th, 2012 5:37 pm

To block or not to block…

By |2023-02-17T10:32:01+11:00July 4th, 2012|Categories: About, My treatment|Tags: , , |

.... As documented many times with this condition, treatment isn't just about relief, it also provides more detail about the issue and this becomes a guide for the next step. It's like taking mini steps of progress and it really feels fabulous, I feel as though I gain some control, I foresee future options and ultimately, I regain some hope. Without this I'm travelling blindly.... I began to really struggle 12 weeks after the first block and even during that time I had a few flare ups. I wondered if my implant perhaps had interfered with my nerve block as it's known to cause pain if you keep it on whilst the pain is at a low-level (yes, try to figure that one out!!) By the time I realised my nerve block was well and truly wearing off I was at the 14 week mark, and having been very excited with what relief I had, Theo and I booked a holiday to Italy. Thankfully the brilliant Dr Courtney was able to fit me in for another nerve block at the 19 week mark which was exactly two weeks before travel time. Why am I mentioning the holiday? Because I believe a nerve block needs support, it needed me to get out of the pain routine and team it up with as much distraction as possible... I felt my brain would freshen up, have a new shot at life and not have to face my day bed, aids, daily pain routine etc etc. I set off to live a dream in hope distraction would bring a positive change and another step forward...

April 26th, 2012 1:07 pm

Now let’s get this straight…

By |2017-12-12T14:48:53+11:00April 26th, 2012|Categories: About, Blog, Living, The pain|Tags: , , |

So, you think you can see pain hey? Or rather your understanding is, if you don't see it then it's not there? Please read on because people like you drive me a little batty... "Pain is invisible!!!"... ...I know, I know, it's shocking and many won't believe it, ever, but it's true... Seen me smiling? It hurts. Seen me having coffee with a friend? It hurts. Seen me walking up the street? It hurts. Seen me having a glass of wine? It hurts. Seen my online social activity? It hurts doing that. Heard I went away for the weekend? It hurts... more. Did I email you? It hurt...

March 21st, 2012 10:52 am

Flare up

By |2017-12-15T15:55:55+11:00March 21st, 2012|Categories: About, Living, The pain|Tags: , |

I have nothing nice to say about a flare up. It's nothing but my injury's hissy fit and a brutal check point that tells me I'm not my old self yet. But since I like to keep a positive outlook and focus on the good things, I will say that coming out of a flare up feels incredible. I feel I could fly, my brain gears up again...

March 5th, 2012 6:50 am

Five years on…

By |2017-12-12T15:14:29+11:00March 5th, 2012|Categories: About, Living|Tags: , |

  • It took five years for Facebook to make a dime and it took five years to reach seven hundred million worldwide users.
  • It would take 5.4 years at Mach 1 (0.34 km/sec) to get to Mars from Earth
  • Willow the cat went missing in Colorado during a house renovation. Five years later, miraculously, the feline was picked up stalking the pavement in Manhattan in New York City and is being reunited with his owners 1800 miles away.
But my point, folks, is that it's taken 5 years to find and shut my pudendal nerve up...
January 24th, 2012 3:51 am

How do I do it?

By |2017-12-12T15:12:29+11:00January 24th, 2012|Categories: About, Learn, Living, Personal resources, Tips|Tags: , , |

Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I'll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!): •I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do •I learned and practice the word pace •I'm more selfish •I say "I can't" and recently I've even stopped apologising because "I can't"! •I let go of obligation (actually I need to work on that one) •Keep any visit short, close, soft (not too many parties unless you can walk away) •I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash •I have a daybed and made a 'dayspace' no where near a television or my bedroom •I have a dog, he's one of my biggest aids

January 23rd, 2012 9:07 pm

My family, Theo, Origin of Image and Zephyr

By |2017-12-11T11:28:17+11:00January 23rd, 2012|Categories: About, Creativity, Living, The pain|Tags: , , |

There isn't one single reason I can give for 'coping', I think a few things play a role. The biggest of all, I believe is my own brain's chemistry and built in ability, something I don't believe I have control over and was born with (and how greatful I am for this ultimate survival gift!), but coming in second, or even on par, is my husbandly support, Theo. I don't know what I would have done if Theo hadn't understood my pain and my eratic injury and hadn't supported me 200%. Seriously there were days I thought I was crazy...

December 20th, 2011 10:02 am

Pain score

By |2022-09-05T11:26:10+10:00December 20th, 2011|Categories: Blog, Learn, Living, Personal resources|Tags: , |

...I developed my own pain score which I'm sure when read by anyone without neuropathic pain, will be enough to convince them I'm mad and in fact I must have fallen on my head not my backside. But this site isn't for those people, (go off and play... you don't need to be here and good luck to you).

December 3rd, 2011 1:31 am

Who says I can’t travel?

By |2014-06-15T08:50:38+10:00December 3rd, 2011|Categories: About, Funnies, Living, Manage|Tags: , |

I know I might be clutching at straws again but at the very least 360 cities is some great distraction and very light in capacity cost. And it's great planning for next time I have some serious pain relief (like a nerve block). I'll be off like a rocket! Ok, maybe not a rocket but compared to the usual pace it'll feel like it.

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