May 2nd, 2015 2:45 pm

This Train is Bound for… Wholeville: A Travel Guide for the Perplexed

By |2017-12-17T12:37:26+11:00May 2nd, 2015|Categories: Learn, My Health Story, Professional Resources|Tags: , , |

Here are some of the important messages that we hope you have taken on board: Your brain can be a powerful tool to help you manage your pain experience. Like all of our life experiences, that of being in pain can be changed. You are not to blame for your persistent pain. You can experience pain without evidence of tissue damage and not experience pain when tissue damage has occurred. Drugs (or needles) alone are not the answer. The “third space” engagement gives you the best possible opportunity to better manage your pain. Consider embracing the whope model of care. Could this be your slogan? Know pain, know thyself!

February 18th, 2015 12:41 pm

SBS Insight: Ouch!

By |2017-12-11T13:11:42+11:00February 18th, 2015|Categories: Learn, Professional Resources|Tags: , , |

As usual, I was waiting for a lead. Waiting to hear that someone with chronic pain had found a way out of it and was cured. Mrs Gleeson, I could have bet you were going to say you were fine, after all, you looked it! And so did Lesley Brydon, Pain Australia's CEO... how could she be in any pain?

October 7th, 2014 10:42 am

ANZCA Bulletin: Simple Accident Leads to Life of Pain

By |2017-12-11T15:03:47+11:00October 7th, 2014|Categories: Advocacy, Print|Tags: , , |

It took nearly five years of chasing answers, of tests and interventions, frustration, grief, and constant, unbearable pain to reach a diagnosis. The fall caused nerve damage in the pelvic area, very real but invisible on MRIs, examinations, X-rays and CT scans. “It is still a primitive time in pain. Being told for four and a half years ‘this is chronic pain ... go home and live with it, there’s nothing that can be done’ is brutal not to mention primitive.”

July 13th, 2014 10:18 am

Blog | Sexology 101 | The Internal Clitoris

By |2017-12-11T16:42:00+11:00July 13th, 2014|Categories: About, Learn, Professional Resources, Pudendal Neuralgia|Tags: , , |

Hallelujah! Pardon my pun here, especially as I'm preaching sexuality on a Sunday morning but finally, here is some thorough research and attention for the clitoris. Thank you Louise Smith for sending this link to me.. I think it's essential info for everyone, not just women with PN. Thank you melodiousmsm for writing this and thank you to artist and sex educator, Betty Dodson for the fabulous artwork.

June 30th, 2014 7:21 am

My Documentary: The Hurting Strings – An Artist’s Story on Pain

By |2023-02-18T10:27:08+11:00June 30th, 2014|Categories: Advocacy, Film, Online, The Hurting Strings|Tags: , , , |

Handmade Films - The Hurting StringsLet's watch The Hurting StringsI'd like to express my biggest thanks firstly to Peter Lamont for taking this project on and for communicating my invisible message with [...]

January 4th, 2014 9:31 am

Visual Pursuits book review on Art & Chronic Pain – A Self Portrait

By |2021-02-24T10:32:28+11:00January 4th, 2014|Categories: Advocacy, Creativity|Tags: , , , |

In Art and Chronic Pain – A Self Portrait, artist Soula Mantalvanos shares her experience with chronic pain, which has been a debilitating presence in her life for almost seven years. Soula suffers from Pudendal Neuralgia, a painful nerve condition that developed following an accident where a fit ball that she was sitting on burst, causing her to drop violently to the concrete floor beneath. Early on in the book Soula describes that split-second, and the devastating effects that followed. A highly active yoga-loving woman before the accident, throughout the book Soula gives a deeply personal account of the psychological, emotional and physical impacts of living with chronic pain for so many years. These negative effects were compounded by the fact that her condition Pudendal Neuralgia baffled her doctors, and took four and a half years to even diagnose.

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