February 25th, 2023 11:06 am

Introducing Nerita Lewis, Founder of Jaspen, a new social platform

By |2023-02-25T11:11:25+11:00February 25th, 2023|Categories: Blog, Learn, Professional Resources|Tags: , , , |

In 2011 when I built pudendalnerve.com.au, the internet was starved of helpful communities and resources. It was the very reason my advocacy began. I didn't want anyone to be as lost as I was on my search for important health information. There were few online portals where people could connect, and the only health information available was through science journals – no individual could understand them! Health orgs that did have a web presence seemed not to have a dialogue with the consumers they claimed to exist for. Thank goodness that's changing, but we still have a way to go as the usual questions remain; What is chronic pain? How can we manage chronic pain and its symptoms and effects? What are the best treatments, and why is there such a lack of understanding? etc This is where Nerita Lewis comes in with her idea to democratise healthcare with Jaspen.

February 12th, 2023 1:25 pm

Soula’s Coconutty Granola

By |2023-02-25T10:46:28+11:00February 12th, 2023|Categories: Blog, Living|

I am skipping more breakfasts; my body manages far better (cutting out goat's feta on the seedy cracker). The less work my body does in the morning, the happier it seems. No pressure! An empty belly is no pressure on the gut. Feeling hungry does not cause pressure and is easier to deal with than the pain effects. I treat myself a couple of times a week to a croissant. On those days, I avoid carbs for the rest of that day. Carbs have to be in very little moderation for me. So finding a non-carb lunch is important, and it had to be easy to put together. Cereal! Well, most cereals have loads of carbs. Granola! A great idea; make a batch and just add fruit. But wait! Most granola mixes have heaps of sugar (and pepitas, which I am allergic to).

November 27th, 2022 12:35 pm

WorkSafe Victoria Instructed to Treat Injured Workers With Dignity and Respect

By |2023-01-24T16:11:05+11:00November 27th, 2022|Categories: Blog, Workcover|Tags: , , |

WorkSafe Victoria Instructed to Treat Injured Workers With Dignity and Respect My letter has arrived informing me that I am one of the 1,500 long-term injured workers WorkSafe is contacting.  So, I had to learn what this was about. It would be best if you were prepared in these distressing situations even though you anticipate the return to the fire pit.  A letter from WorkSafe is never a simple letter. It will never be pleasant, never hopeful and nor will it ever be about justice, support or care. Letters from WorkSafe are about WorkSafe and steered at ticking their boxes.  Injured workers now have to help WorkSafe clean up their mess.

September 24th, 2022 11:50 am

My Lived Experience at CODA Conference

By |2023-02-25T11:08:42+11:00September 24th, 2022|Categories: Advocacy, Blog, Events, Learn, Professional Resources|Tags: , , , , |

The Primary Care workshop at this year's CODA Conference was my favorite lived experience contribution to date! The workshop approach was more effective than my other 'standup gigs'. Something has clicked with me lately – I've stepped out of chronic illness's emotional and physical sides and more often partaking in health education. I like it! We must believe that twitches, spasms, toilet function-changing effects, noise, screaming, soreness, stabbing, burning, itching, fatiguing, and draining effects of chronic pain can be controlled. If you had told me this between my first and 4.5-year mark, I would have felt angry and said, 'My issue is severe, far more serious than everyone realises, and my healthcare practitioners are all missing the terrible thing in my body, and I am going to die from it.'

September 7th, 2022 11:52 am

A Venetian Refuelling (part 2)

By |2022-09-07T11:58:48+10:00September 7th, 2022|Categories: Blog|Tags: |

While 'researching' places to eat as I sat by the canals drawing, Theo accumulated excellent bearings for Venice's delightful geographical maze. This helped us find the shortest way around the place when we needed it as we're both always concerned about how my up-time is managed. Theo gathered an impressive list of food recommendations, as mentioned in the full report of our Italian trip, Venetian Refuelling (part 1).

September 7th, 2022 11:51 am

A Venetian Refuelling

By |2023-02-05T10:26:12+11:00September 7th, 2022|Categories: About, Blog, Living|Tags: , , , |

I feel completely rejuvenated and jubilant after Theo's and my recent 3-week trip to Italy. Since my spinal cord stim implant, our life and livelihood seachange, and now, with an anti-inflammatory focus, I can feel confident that pain levels will remain right down and my happiness right up. This is a big announcement for my brain.

July 28th, 2022 2:47 pm

Talking Healthtech: Dr Valerio Vittone on Long COVID

By |2022-11-27T15:30:37+11:00July 28th, 2022|Categories: Blog, Learn, Professional Resources, The pain|Tags: , , , , |

Since investigating my DNA with Dr Valerio Vittone, I believe more that my health issue is not about chronic pain but rather about inflammation. I've reaped magnificent rewards since implementing recommended dietary [...]

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