November 28th, 2012 7:56 pm

Take a seat… if you can!

By |2020-09-05T11:15:11+10:00November 28th, 2012|Categories: About, Blog, Learn, Living, Personal resources, The pain, Tips|Tags: , |

With Pudendal Neuralgia, or any other pelvic chronic pain issue, it can be impossible to sit pain free (let alone get away without a flare up). Of course, I'm no pro when it comes to seating, but I've learned a lot from my own experience and from listening to the 'ouch' in my pelvis. The seating I needed, was most often hand-made! (Have a look at the one my gorgeous father in law made, it's the stool with adjustable foot rest!) Although I've worn out, thrown out, tried and tested so many more seating aids, I'm showing the ones that have lasted or worked for a while. These are the ones I often resort to.

November 28th, 2012 9:05 am

Performance ‘fit for modified duties’

By |2023-01-24T16:12:33+11:00November 28th, 2012|Categories: About, The pain, Workcover|Tags: , , |

Did you all hear I'm back at work part time? Much thanks to our flexible home/office setup and Theo's immense help. Regardless, how lucky am I hey? But oops, hang on, I have to correct myself. It's not lucky for me, it's lucky for the WorkSafe Agent. And I must clarify because from their point of view I didn't get myself back to work, it had nothing to do with my research, the practitioners I found, their treatment and great therapies (or my hip pocket!). Nope, nothing to do with nerve blocks and medication, but rather, my high activity levels. Yeeees, I have been a full time artist and I've been caught red-handed!!! Well I'm sick of this crap! And this time, the story isn't going to end with me feeling anxious and swallowing those bits of paper, while the Investigators excuse themselves gutlessly with a letter marked 'Private and Confidential' that they send to the WorkSafe Agent. It's going to end here, on my blog. And I'm even going to have some fun while I'm at it! ...And if you're an investigator wanting to comment, don't bother! Your comments will be deleted. As I said, this time the story ends with me.

October 23rd, 2012 10:28 am

Back to life

By |2023-01-24T16:12:34+11:00October 23rd, 2012|Categories: About, Creativity, Living, The pain, Workcover|Tags: , , , , , , , |

...please gear up with me, imagine the drum rolls and the biggest mountain you can imagine with me standing on the tippy top yelling because this IS real, IT'S true, IT'S official: I'M BACK AT WORK!!!!!!!" No, I've not overdosed on my medication and the stress of a chronic pain issue has not damaged me enough to be hallucinating.., I. AM (wiggling heaps but all the same). SITTING. IN. A (very nice ergonomic). CHAIR. TYPING. THIS. POST!!!!

September 26th, 2012 9:53 pm

Awwwards Honorable Mention

By |2017-12-15T15:54:49+11:00September 26th, 2012|Categories: About, Creativity, The pain|Tags: , |

Oh happy day! Yes this website has been nominated for an Awwwards 'Site of the Day' with an Honorable Mention. Please help me say, 'thank you' to the wonderful team at Origin of Image who helped me put this pelvic pain resource together and in turn gain more awareness for pudendal neuralgia. All you need to do is visit this awwardswebsite link, log in with your facebook or twitter account (or register) and rate us from 1-10. To date, pudendalnerve.com.au has had almost 10,000 visitors. It certainly isn't anything to be happy about, that's alot of people in pain, but if thats an indication the website is indeed becoming a resource, creating awareness and helping with the frustration of chronic pain, which in turn gives great relief and direction, then I'll be very happy. My chronic pain at least served a purpose.

September 4th, 2012 11:40 am

Naomi Wolf’s enjoyment sex nerve needed repair

By |2017-12-11T09:42:20+11:00September 4th, 2012|Categories: About, Pudendal Neuralgia|Tags: , , , |

(Excerpt from the Daily Mail's newspaper) Feminist Naomi Wolf finds enjoyment in sex again after her nerve 'wiring' is repaired by surgeon • Author felt something different was happening after sex • 'I felt I was losing somehow, what made me a woman' • Doctor found she had been born with mild spina bifida

July 9th, 2012 11:16 am

Italian lifestyle, perfecto for Pudendal Neuralgia

By |2023-02-17T10:32:01+11:00July 9th, 2012|Categories: About, Living|Tags: , , |

...So with my returned senses came dreams, with senses and dreams came diagnosis, with diagnosis came, finally, appropriate treatment, and with the right treatment came great pain relief and some much deserved and needed increased capacity. I feel I've arrived on a very high mountain but had to crawl all the way up over 5 1/2 years. So, here we are on the mountain, I mean, in Italy, and boy did we pick the right place! Not only did we have a divine holiday but we stumbled on what feels like a miracle treatment for my form of PN and that was part of the Italian lifestyle: bidets and siestas...

July 4th, 2012 5:37 pm

To block or not to block…

By |2023-02-17T10:32:01+11:00July 4th, 2012|Categories: About, My treatment|Tags: , , |

.... As documented many times with this condition, treatment isn't just about relief, it also provides more detail about the issue and this becomes a guide for the next step. It's like taking mini steps of progress and it really feels fabulous, I feel as though I gain some control, I foresee future options and ultimately, I regain some hope. Without this I'm travelling blindly.... I began to really struggle 12 weeks after the first block and even during that time I had a few flare ups. I wondered if my implant perhaps had interfered with my nerve block as it's known to cause pain if you keep it on whilst the pain is at a low-level (yes, try to figure that one out!!) By the time I realised my nerve block was well and truly wearing off I was at the 14 week mark, and having been very excited with what relief I had, Theo and I booked a holiday to Italy. Thankfully the brilliant Dr Courtney was able to fit me in for another nerve block at the 19 week mark which was exactly two weeks before travel time. Why am I mentioning the holiday? Because I believe a nerve block needs support, it needed me to get out of the pain routine and team it up with as much distraction as possible... I felt my brain would freshen up, have a new shot at life and not have to face my day bed, aids, daily pain routine etc etc. I set off to live a dream in hope distraction would bring a positive change and another step forward...

May 23rd, 2012 11:26 pm

A Dream Came True Today

By |2017-12-15T15:55:19+11:00May 23rd, 2012|Categories: About, Living, The pain|Tags: , |

What’s also revealed here is the origin of our Jack Russell’s name, Zephyr (who is actually more like a hurricane), but… back to my life moment, back to one of the big, completed circles of my life… I was moved completely. So moved I couldn’t move, stuck to the floorboards with only one way to go, closer, if only everyone else would get out of MY way!! I almost felt I had a special right after loving the piece for most of my life, painting her, drawing her over and over. I almost couldn’t understand why no one could see these facts, and why didn’t they all also know I was the one with the tattoo of Venus on my tail? I contained myself, I was in danger of setting off the alarm and for the life of me wasn’t about to live down to Theo’s expectations...

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