Blog - Page 2 of 35 - pudendalnerve.com.au

July 20th, 2023 3:03 pm

Gallery
Let’s Be Brave Together

Let’s Be Brave Together

By Soula Mantalvanos|2023-07-20T15:03:14+10:00July 20th, 2023|Categories: Blog|Tags: advocacy, fundraising|

A few months ago and just appointed as CEO of Painaustralia, I was chatting to Giulia, who was making time to connect with people living with pain; our next step would be an interview for some media. Instead, I received an awful message. Giulia is a tough cookie, just watch our chat and feel that fire in her! And she'll be using that fire to put this awful experience to great use - raising funds for So Brave and Painaustralia as she shaves her hair on 31 July. I want us all to get behind her. It's an opportunity to maximise this incredible act of bravery and help two causes that cause such grief in life; Cancer and chronic pain. All funds raised will go to So Brave breast cancer charity and Painaustralia, the peak body representing those in chronic pain - we'll be helping a considerable group of people with one donation.

July 2nd, 2023 1:48 pm

Gallery
More and More Fab Women Founders, More and MoreGoodDays

More and More Fab Women Founders, More and MoreGoodDays

By Soula Mantalvanos|2023-07-02T13:55:11+10:00July 2nd, 2023|Categories: Blog, Help, Professional|Tags: advocacy, My Health Story, pain management, professional resource, self management|

Woohooo! The startup world is beginning to thrive with people who want to impact healthcare using their negative experiences. These people want to help others, change the quality of care and make sure you get better faster. One of these great people is Neala Fulia, and I am excited to have the chance to introduce More Good Days (MGD), a new online digital healthcare company Neala founded dedicated to helping individuals find relief from chronic pain - specifically fibromyalgia. I'm also excited that MGD has become a Friend of My Health Story (MHS), which signifies a shared commitment to improving the quality of care for all of us. It's what we all deserve and what has been so slow in coming.

June 4th, 2023 8:28 pm

Gallery
‘Reading’ books, books and more books

‘Reading’ books, books and more books

By Soula Mantalvanos|2023-06-04T20:28:46+10:00June 4th, 2023|Categories: Blog, Help, Personal|Tags: New life, professional resource, soula|

Well, not entirely reading; using my ears instead! Where have I been? Seriously, how did I not get into Audible sooner? You would struggle to get me [...]

May 25th, 2023 11:49 am

Gallery
Chronic Pain Australia National Pain Survey

Chronic Pain Australia National Pain Survey

By Soula Mantalvanos|2023-05-25T11:49:31+10:00May 25th, 2023|Categories: Blog|Tags: research|

Yep, it's another call for your lived experience. I know how exhausting and affecting these surveys can be. I approach surveys with a personal mental measure of worthiness and value. In [...]

May 22nd, 2023 2:50 pm

Gallery
A glorious facade – just look at me!

A glorious facade – just look at me!

By Soula Mantalvanos|2023-05-22T14:50:00+10:00May 22nd, 2023|Categories: About, Blog, Living|Tags: self management, soula|

(Photograph Ivan Kemp) Do you like this picture of me? When I see this photo of myself, I see someone proud and accomplished. My posture reflects inner [...]

May 1st, 2023 12:53 pm

Gallery
My Health Story Friends, Your New Care Network

My Health Story Friends, Your New Care Network

By Soula Mantalvanos|2023-05-01T12:53:10+10:00May 1st, 2023|Categories: Help, My Health Story, Professional|Tags: pain management, professional resource, treatment|

Meet MHS Friend, Wise Psychology Over my 16-year period navigating this awful forest, I've met some pretty amazing people. I've also met many who have no idea about treating chronic health issues, and they will never become MHS Friends, I can tell you. I'm going to filter the good ones. And you are welcome to help me - pop me an email with your best! Or if you are a service or group and you think, 'hey that's me!' please also contact me or read more here. So let's start with mental health support you can receive via telehealth within a week. It's not uncommon for MHS subscribers to feel hesitant about either joining or discussing their health stories with a healthcare provider via MHS as the practitioner might not be keen on embracing new technology, or they say they ‘don’t have time’, or the patient is too intimidated even to ask. Well, MHS Friend, Wise Psychology, is not like that. In fact, they want to read about your lived experience and learn as much as possible before your appointment.

April 12th, 2023 11:33 am

Gallery
PainAustralia Survey Report: Impact of opioid regulatory reforms on people living with chronic pain

PainAustralia Survey Report: Impact of opioid regulatory reforms on people living with chronic pain

By Soula Mantalvanos|2023-04-12T11:33:10+10:00April 12th, 2023|Categories: Blog, Learn, Professional Resources|Tags: advocacy, education, media, research, study|

When will patients be understood and listened to?! It’s obviously necessary to have a peak body addressing the needs of the pain community. Still, the frustration of [...]

April 8th, 2023 1:45 pm

Gallery
My recent chat with PainAustralia’s new CEO, Giulia Jones – Giulia has quite the agenda!

My recent chat with PainAustralia’s new CEO, Giulia Jones – Giulia has quite the agenda!

By Soula Mantalvanos|2023-04-09T11:14:47+10:00April 8th, 2023|Categories: Advocacy, Blog, Online|Tags: advocacy, research|

Making the invisible visible You'll hear this wonderful reference in my chat with Giulia – to make what is invisible visible is one of her four goals while in the position of CEO at PainAustralia. I found Giulia incredibly down-to-earth and easy to connect with. Of course, with six children, you instantly know she understands pain (and is highly able!!), but her admission that she had never thought of the pain she experienced as chronic really struck me.

March 27th, 2023 12:22 pm

Gallery
Feedspot Top Blog: No 6 of 70 Pain Management Blogs and Websites

Feedspot Top Blog: No 6 of 70 Pain Management Blogs and Websites

By Soula Mantalvanos|2023-03-27T12:23:10+11:00March 27th, 2023|Categories: Blog|

I'm a top blogger in this day and age of youthful influencers! And I'm also really proud to be a representative of the lived experience among a stream of companies and services listed on FeedSpot's 70 Best Pain Management Blogs and Websites. And, I'm the only Australian-listed blog in the top 40. Rated number six and facing the world with a profile image among business logos, I feel quite chuffed about this achievement.

March 27th, 2023 12:21 pm

Gallery
Own Your Health Data

Own Your Health Data

By Soula Mantalvanos|2023-03-27T20:18:57+11:00March 27th, 2023|Categories: Blog, Learn, Manage, Professional Resources|Tags: My Health Story, self management|

Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?