Gnawing, aching, pain in the butt feeling
Ages ago, I blogged about this magic move my diagnosing physiotherapist showed me. It was the first time in 4.5 years that my pain was shut off. It was heaven and I [...]
October 5th, 2019
9:44 pm
September 27th, 2019
2:01 pm
Hello. I’m back!
It's an act of forwards and backwards, sideways and a lot of down ways. It's really hard work. The less it yells, the better I feel and only then can I do more and pace up. The more I poke it, the worse it gets. The worse it gets, the deeper into the hole I go and further away from coming back out! I don't just pay with pain, I pay with time – lifetime!
September 26th, 2019
5:14 pm
«Χρόνιος πόνος: η ύπουλη ασθένεια που κλέβει τη ζωή χιλιάδων ανθρώπων»
(Excerpt from Neos Kosmos feature story, Chronic pain: the treacherous disease that steals the lives of thousands, MAΡΙΑ ΚΑΜΠΥΛH 25 September 2019) Η συγκλονιστική συνέντευξη – κατάθεση ψυχής της ομογενούς Σούλας Μανταλβάνου, που [...]
June 30th, 2019
2:27 pm
Insurer Request: Your Full Clinical File Please!
If you dress well - this system assumes you couldn't possibly have a health issue. If you speak well, there's no way you have suffered trauma. If you manage to stay alive through your darkest moments, they assume you can forfeit your compensation. When you are honest and remain transparent, they only abuse your information.
June 17th, 2019
4:17 pm
A national plan for better pain management (we hope!)
MEDIA RELEASE 17 June 2019 At last – A national plan for better pain management Painaustralia has today launched the new National Strategic Action Plan for Pain Management. Millions of Australians live [...]
May 17th, 2019
2:09 pm
ABC Workers’ Compensation System Investigation
(Image: 2012 investigator’s photo, read the full post here) ABC investigative journalist, Pat McGrath is looking into the experiences of people who have been through the workers’ compensation system – and those [...]
March 10th, 2019
12:13 pm
John Quintner: A Follow up Interview
A few months before I decided to ease on the advocacy, I contacted my dear friend Dr John Quintner asking him if he was up for a followup interview. Ever willing to [...]
March 2nd, 2019
9:33 am
Excusing Myself For a Bit…
I'm finding it draining to advocate and blog my experiences. But also, I don't feel my voice is as necessary anymore. I want to be known for my creativity and where it aligned with chronic pain to influence behaviour change – specifically the structure of appointments.
February 17th, 2019
11:41 am
Out With the Sacral, In With the Spinal (part 3)
It will take one whole year until stim and I get to know each other. I've done this twice before, I know! There are programs to explore, capacity to pace, and sitting to try without the aids. I want to hop in a train and a tram, and hop off in the city without an agenda and limits. I want to catch up with my dearest friends, some whom I've not seen since I left Melbourne. We've been living off parcels, emails and the phone, and that really hurts.
February 12th, 2019
3:58 pm
Out With the Sacral, In With the Spinal (part 2)
Where to next? (Part 2/3) I knew there was something seriously wrong with my sacral stim implant. By the time that information was confirmed, my mind had run off a few thousand [...]