I'm finding it draining to advocate and blog my experiences. But also, I don't feel my voice is as necessary anymore. I want to be known for my creativity and where it aligned with chronic pain to influence behaviour change – specifically the structure of appointments.
It will take one whole year until stim and I get to know each other. I've done this twice before, I know! There are programs to explore, capacity to pace, and sitting to try without the aids. I want to hop in a train and a tram, and hop off in the city without an agenda and limits. I want to catch up with my dearest friends, some whom I've not seen since I left Melbourne. We've been living off parcels, emails and the phone, and that really hurts.
Where to next? (Part 2/3) I knew there was something seriously wrong with my sacral stim implant. By the time that information was confirmed, my mind had run off a few thousand [...]
Then things got even more strange. There was heat, radiating heat where the IPG is, in my face and also other strange feelings that not only added to my pain issues but it made me turn my stim off, more than on! Weird.
While you read this, I'm in total bliss under full anaesthetic having my spinal stim implanted and my sacral stim (which fizzed) removed. I've popped this poem in my head, and now yours too in the hope that Brain Plasticity, in all its madness as clarified so perfectly in Michael's poem and illustration, works its nonsense on me.
If it weren't for my sense of humour, I'd be well and truly dead a long time now. I thought I'd kick off 2019 with something Theo found that is (not, IS, not, IS) so funny. Wishing you all stitches of laughter for 2019... xx Theo & Soula
Can’t say I’m feeling festive. But my treatment glitch is no excuse to put a damper on everyone else’s holiday season. I love seeing people happy and having a great time. And [...]
As long as WorkSafe and their Agent keep treating me unfairly and refuse to support me in the way that I am entitled, I’m going to keep [...]
I’ve never had much success with inflatables. However, Freddie is a little different – he’s got structure and he’s not so wobbly. If you’ve sat on one of [...]
There was no rushing to catch transport! And the sounds of Venice are soothing and happy. In the morning we woke to the sounds of the local's footsteps and the sounds of them working along the canal. Local chatter in the street, dogs barking and of course, the church bells. Sounds impact a person with a chronic illness. My mind was at peace, it felt rested, all was calming and gentle.
