About Soula Mantalvanos

“I felt I had lost my independence, I could not communicate and express my personal experience and that no one understood me.” Soula combines her many years of chronic pain with her professional design experience to advocate about misdiagnosis and injured Victorian workers. Soula founded pudendalnerve.com.au and PainTrain My Health Summary to help raise the quality of care for those enduring and treating chronic pain.
September 30th, 2013 5:34 pm

Theo and I, live on The Scheme Project’s broadcast

By |2023-01-24T16:12:32+11:00September 30th, 2013|Categories: Workcover|Tags: , , , |

Doing my bit again for injured workers and hoping that sharing my story will bring positive change to the primitive Workers Compensation system in Australia. Both Theo and I attended today's live [...]

September 21st, 2013 12:59 pm

Soula’s PN Weather Update

By |2023-02-17T10:32:01+11:00September 21st, 2013|Categories: About, Blog, Pudendal Neuralgia, The pain|Tags: , , , , |

It's been a while since I posted a personal update but it's probably accurate to say that PN's weather patterns need to be documented seasonally. I mostly have turbulence, like it's sunny one day/stormy the next, or otherwise described as I take two steps forward and about 1.9 steps back. It's incredibly frustrating. So rather than report all the fluctuating details in between, it's best to leave some months go by to really figure out the progress. So now, the months have gone by and I can deliver to you, Soula's PN weather update for September 21, 2013.

September 3rd, 2013 10:12 pm

John Quintner

By |2022-03-21T12:11:32+11:00September 3rd, 2013|Categories: Learn, Professional Resources|Tags: , , , , |

I've made some great friends in cyber space throughout this PN pain journey (and developed quite a library along the way!). One friend I consider a favorite is John Quintner. He's one of my most reliable sources when I need an honest opinion. We bump into each other over two main mutual 'interests': the (primitive) WorkCover assessment methods, and pain definitions. John doesn't just know what he's talking about, he's upfront, honest and calls it how he sees it. And when someone has these credentials, I'm all ears, not to mention I become much wiser!

September 3rd, 2013 8:03 pm

$6 Billion woman and the $600 Million Girl

By |2023-01-24T16:12:32+11:00September 3rd, 2013|Categories: Learn, Professional Resources, Workcover|Tags: , , , , |

the PELVIC PAIN report “Pelvic pain, while common, is often a hidden burden to the lives of many women. With emerging national and international knowledge about pain and the heavy toll it [...]

July 7th, 2013 11:47 am

Reply to my ‘Fair Assessment for Compensation letter’

By |2023-01-24T16:12:33+11:00July 7th, 2013|Categories: Workcover|Tags: , , , , |

After speaking with Kris Vanston I now know that injured workers do have the Victorian Ombudsman to turn too for unfairness issues within the WorkCover system. I had my doubts about contesting my impairment score of 0% (that was deemed permanent I might add), as I am very well aware and have ranted aplenty about Chronic Pain NOT being acknowledged in the guidelines that are used to assess injured workers. That means there is Australian legislation (I'll rephrase; it is legal) for WorkSafe practitioners to ignore Chronic pain, thus Pudendal Neuralgia. No where within the system will any WorkCover practitioner be able to assess an injured worker's Chronic pain. I'm experiencing the result of this, I've been living this ignorance since March 2007. I wrote a letter that was ignored for a few months by our WorkCover Minister, WorkSafe and SafeWork Australia. The Victorian Ombudsman employee informed me not to use the 'info' email address but rather the 'enquiries' one when I'm writing to WorkSafe. Ridiculous but he was right and I eventually received a response. (Enter sarcasm) I now feel completely healed and completely relieved with the empty response I received. It managed to 'acknowledge', 'agree', 'assure' and confirm all the points relating to this outdated system that I initially made in my letter. I'm also more at ease knowing everyone who assessed me ignored all my symptoms and inabilities and that was legal. I'm also proud of the staff at WorkSafe who are happy to abide by ignorant and narrow-minded measures that would also apply to them in the event they injured themselves at work. Above all, I'm in awe of the WorkSafe staff and all related employees and practitioners who's reports are so loyal and discerning of these out-of-date AMA4 guidelines (with pain chapter removed), and The Accident Compensation Act 1987. This template response clearly indicated to me that anyone with chronic pain and with any of the following symptoms/limitations, as a result of a workplace accident will not get compensation: affected toilet function, spasms where you really don't want them, sensory pain (in my case throughout the pelvis), toothachey nerve pain, weakening legs, burning, zinging, if you have limited sitting ability, if you are limited in walking, standing, working, lifting, bending, exercising, if you have an implant as a result of pain (or even if you need one for that matter), if you rely on daily help, if you can't drive, shop, sit and type this damn email in one hit etc etc...! Well thank you WorkSafe for the 'quality' protection you promise. And Heidi just one question, would this letter have been acceptable for you if you were in my shoes?

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