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November 20th, 2011 3:06 am

Help? Yes please

By |2012-01-16T07:17:31+11:00November 20th, 2011|Categories: Learn, Manage, Personal resources|Tags: , |

This shouldn't take too long to grasp but I understand it may take a little while to actually put it into motion... Not used to having help hey? Well I wasn't either, never needed any. But once I realised I could get more out of my day by learning "Yes please", it got easier to say it. In fact I ask for help now. I even leave things on the floor if its a bad day (just push it aside with my foot, it'll be dealt with later) because I realise it means more capacity to do other things and LESS PAIN. Of course this only applies if you have help...

November 19th, 2011 10:41 am

Diagnosis: Physiotherapy at the Women’s

By |2023-02-17T10:32:01+11:00November 19th, 2011|Categories: Help, My treatment, Professional|Tags: , , , , |

It felt like a miracle and took all of about 15 minutes for the phsyiotherapist (at the chronic pelvic pain clinic at the Women's here in Melbourne Australia) to give me her French infused explanation that my pain was most probably coming from my Pudendal Nerve (yes, a name, I had a name!). It took another 15mins for her to put me in on my back (I never lay on my back as it was too painful) and apply a pressure/postural technique that switched my pain off! (Yes, OFF... calm, silence, stillness, roar gone, no spasm, quiet, peace)... unbelievable but this is true.

November 19th, 2011 12:53 am

Escape the birdcage

By |2017-12-11T16:14:02+11:00November 19th, 2011|Categories: Creativity, Living, Manage, The pain, Workcover|Tags: , |

Its limiting living in a birdcage!!! But when you are injured, unable to work, need to rely on a system for money, you don't want to risk losing your only source of income. So you sit, gagged, locked up, don't attempt or try anything and that can be most damaging. How did I survive in the birdcage?

May 22nd, 2011 8:36 am

The way relief continued…

By |2022-09-05T11:26:11+10:00May 22nd, 2011|Categories: About, My treatment|Tags: , , , , |

A few months into my implant and I felt like I was human again... my senses were back and it was incredible!! That thick pain fog was lifted and I could taste, smell, see, concentrate, focus, remember, listen, think, plan, dream, enjoy, laugh, read, oh what bliss!!!!

February 20th, 2011 7:06 am

The way relief started

By |2023-02-17T10:32:01+11:00February 20th, 2011|Categories: About, My treatment|Tags: , , , , |

In my case, the procedure was much less complicated as I didn't need the leads to go through the spinal canal but rather along my sacrum and coccyx. There is a trial period in which the unit sits outside and is 'plugged in' via the leads that, yes, are sticking half out/half in your body. Look I know that might sound gruesome to some but please... we're talking about chronic pain here... it was NOTHING. A cinch... it worked, it's in now and giving me great pain relief.

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Soula Mantalvanos created pudendalnerve.com.au to advocate for people living with Pudendal Neuralgia and other invisible and chronic illnesses. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. The website includes topics about chronic pain, pelvic pain, pudendal neuralgia, injured workers, workers compensation, inflammation, chronic illness, patient empowerment, self efficacy, better healthcare, nerve pain, various treatments such as nerve blocks, neurostimulation implants and the courage that is required for self management. All information on this website is a account of Soula's lived experience and should not be taken in anyway as advice or recommended treatment for any other person or healthcare professional. Chronic illness is a unique experience and therefore requires better understanding and tailored care. © Copyright 2023 -    |   pudendalnerve.com.au created by ooi   |
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