Would have been great if all injured workers labelled as 'complex cases' were notified of this survey participation call. Thank you to my twitter sister, Everyday AUSSIE @GalGeelong for letting me know. [...]
I'm closing the door on the 'reasoning rooms' and I'm not going to investigate what might have caused a sudden flare. 'Soula, let's not go there. Don't enter that routine. Don't walk towards the dead end. Don't waste your time... again!' 'You've wasted years, Soula. Over a decade in fact thinking in rooms that provided no answers. They are mostly empty – blank walls, no windows, no air to breath!'
Drug Interactions Checker This is a great resource for anyone taking medications. Perhaps if I had this during my medication experimentation phase, I wouldn't have felt so confused about my symptoms. All [...]
Life's pace is vastly slower if you are living with chronic pain. Anticipated outcomes from things like new treatments, explanations about causes of pain, pain research, realisations about personal ideas relating to my own experience all take months, years and even over a decade to arrive. Yesterday was the day I finally received some closure about the wicked Lyrica. There's been a build-up of medication reporting this past year but none of it hit the spot like The Project's report. I love the reporting on this show – it's one of the few programs that brings me to the TV. While watching last night, I got that bullseye feeling: I'm not crazy! How often does a person living with pain come to this blissful realisation? Not often enough I can tell you.
Not knowing what's ahead is a familiar nightmare for people living with chronic illness and injured workers and their families. This lived experience has been misunderstood. This lack of empathy could not have been understood without the personal experience of something like COVID-19 – something impacting the world. Even Governments may just get a glimpse of looking down at their feet and feeling the ground below them is trembling. Being unable to make plans and left dangling, waiting to hear about a way forward – whether you can resume work or even have a job (or business) is excruciating. Add a long-term health issue to that equation and the world begins to fall in on you. You can't help but ask, 'will I get through this?'
Join Dr. Echenberg (Dr E) and the Pain ‘Down There’ team as we talk with Lior Ofir about her experience with Restless Genital Syndrome (better known as Persistent Genital Arousal Disorder or PGAD). Lior will share her story and Dr. E will give us medical insights into this syndrome that afflicts an unknown number of women. We’ll talk about: – why this syndrome needs a new name – why there’s such hopelessness and desperation surrounding it (and why that doesn’t have to be the case) – the top 3 things on Lior’s list to manage her symptoms – vestibulectomies – how to talk to your spouse or sexual partner
When I presented at the Royal College of General Practitioners Dealing With Addiction Conference in 2018 (GPADD18) I was astounded to learn the stats on overdoses. I was horrified to learn [...]
8am – 12noon tradies here ‘fixing’ heating/cooling unit (making noise, causing disruption and breaking much-needed silence). + Phone calls, all day (important, relating to mum’s future care plan). + Huge tree on [...]
I keep on learning about my sensitivities – it’s mind-boggling! Had someone told me I’d feel the difference between a smooth-surfaced road and a rough-surfaced road while travelling in a car I [...]