Suck it up and smile – it’s holiday time!
Yippee!! Not! It’s too hard. I was dreading Christmas – like I usually do. And I’m dreading New Year’s eve and day – as I usually do. And even though I would [...]
December 28th, 2016
1:10 pm
September 29th, 2016
1:28 pm
My interview with the ABC 7:30 report
(View the story online http://www.abc.net.au/7.30/content/2016/s4547621.htm) Tune in tonight for my interview in regard to navigating practitioners with a chronic illness. On the ABC's 7:30 report (yes, on ABC at 7:30) Patient's have [...]
July 11th, 2016
4:54 pm
Resources for Treating Chronic Pain by the Pain Specialists Australia (PSA) …MY pain team!
Forgive my bossiness but this post comes from a desperate experience that I lived for 4.5 years. That’s a long time for someone with increasing chronic pain levels and not much hope. [...]
July 3rd, 2016
10:26 am
Adventures of a stim controller
Ever wondered what a stim’s controller’s day looks like? Firstly, let me clarify that I’m talking about my Boston Scientific Sacral Stimulation Implant controller (BSSSIC), not my St. Jude’s Peripheral Stimulation Implant [...]
June 27th, 2016
7:48 pm
Time to exercise – but how?
It took six full months for me to feel I was ready to have my follow up appointment with Dr Nick Christelis after my Sacral Stimulation Implant. I got a few ticks [...]
June 12th, 2016
9:52 pm
Who am I going to be – Soula ‘a’, ‘b’ or ‘c’?
My new stim’s changed everything. I’m grateful. Can you imagine if the whole process (from trial to permanent implant) hadn’t change anything? In addition to the stim changing everything, I’m living a [...]
April 18th, 2016
3:21 pm
Drug dependency lessons from Pharma ads and my two mothers
I can’t stand TV as it hurts to sit or lie back and watch but recently, while tuning in to one of the very few shows I do watch, I caught a [...]
December 28th, 2015
11:47 am
I made a gallery
True! Theo and I made a huge life move as many of you have read. Our transition began over a year ago when we escaped to Tasmania [...]
October 24th, 2015
5:26 pm
My pain management is turning into a thesis!
It’s taken almost 9 years but I’ve realised that chronic pain requires alot of study – dare I say never-ending study? I believe my research for pain relief for chronic pain may [...]
September 28th, 2015
8:18 pm
How can you know? There might be better treatment out there!
I know that living with pain for over eight years reduces confidence and belief. It even (warning, I'm going to use the C word), discourages hope for a cure. But how could I have assumed I found my best self for four years (nearly five actually, gulp!)?