September 27th, 2019 2:01 pm

Hello. I’m back!

By |2022-09-06T11:40:14+10:00September 27th, 2019|Categories: Blog|Tags: , |

It's an act of forwards and backwards, sideways and a lot of down ways. It's really hard work. The less it yells, the better I feel and only then can I do more and pace up. The more I poke it, the worse it gets. The worse it gets, the deeper into the hole I go and further away from coming back out! I don't just pay with pain, I pay with time – lifetime!

February 17th, 2019 11:41 am

Out With the Sacral, In With the Spinal (part 3)

By |2023-09-04T14:15:20+10:00February 17th, 2019|Categories: My treatment|Tags: , |

It will take one whole year until stim and I get to know each other. I've done this twice before, I know! There are programs to explore, capacity to pace, and sitting to try without the aids. I want to hop in a train and a tram, and hop off in the city without an agenda and limits. I want to catch up with my dearest friends, some whom I've not seen since I left Melbourne. We've been living off parcels, emails and the phone, and that really hurts.

February 6th, 2019 6:04 pm

Out With the Sacral, In With the Spinal (part 1)

By |2023-02-17T10:32:00+11:00February 6th, 2019|Categories: Blog, My treatment|Tags: , , , |

Then things got even more strange. There was heat, radiating heat where the IPG is, in my face and also other strange feelings that not only added to my pain issues but it made me turn my stim off, more than on! Weird.

December 13th, 2018 12:45 pm

Spinal Cord Stim Trial Day 6

By |2023-02-17T10:32:00+11:00December 13th, 2018|Categories: About, Learn, My treatment, Professional Resources|Tags: , , , , |

I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!

July 22nd, 2018 2:33 pm

Pain Revolution Names PainTrain a ‘Best Resource’

By |2022-11-26T20:58:49+11:00July 22nd, 2018|Categories: Blog, Help, Manage, My Health Story|Tags: , , , , |

PainTrain has followed Pain Revolution very closely over the years and its this research with Soula's experience that has driven the PainTrain concept. We love having your support all the way Soula! Your [...]

July 5th, 2018 9:54 am

Royal Australian College of GP’s news – I’m in it!

By |2018-07-05T09:54:04+10:00July 5th, 2018|Categories: Advocacy, Blog, Events, News, Online|Tags: , , |

I’m an event in the spotlight. GP’s, I hope to see you there! (Article from RACGP June newsletter) Events in the spotlight GPADD18 Conference: Saturday and Sunday 4–5 August 2018 The RACGP Victoria [...]

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