December 13th, 2018 12:45 pm

Spinal Cord Stim Trial Day 6

By |2023-02-17T10:32:00+11:00December 13th, 2018|Categories: About, Learn, My treatment, Professional Resources|Tags: , , , , |

I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!

June 9th, 2018 11:22 am

Frida Kahlo: Portrait of Chronic Pain

By |2018-06-09T11:31:59+10:00June 9th, 2018|Categories: Learn, Professional Resources, Read|Tags: , |

The Mexican artist Frida Kahlo (1907–1954) is one of the most celebrated artists of the 20th century. Although famous for her colorful self-portraits and associations with celebrities Diego Rivera and Leon Trotsky, less known is the fact that she had lifelong chronic pain. Frida Kahlo developed poliomyelitis at age 6 years, was in a horrific trolley car accident in her teens, and would eventually endure numerous failed spinal surgeries and, ultimately, limb amputation. She endured several physical, emotional, and psychological traumas in her lifetime, yet through her art, she was able to transcend a life of pain and disability. Of her work, her self-portraits are conspicuous in their capacity to convey her life experience, much of which was imbued with chronic pain. Signs and symptoms of chronic neuropathic pain and central sensitization of nociceptive pathways are evident when analyzing her paintings and medical history. This article uses a narrative approach to describe how events in the life of this artist contributed to her chronic pain. The purpose of this article is to discuss Frida Kahlo's medical history and her art from a modern pain sciences perspective, and perhaps to increase our understanding of the pain experience from the patient's perspective.

May 27th, 2018 3:45 pm

I Turned a Corner

By |2022-11-26T20:58:49+11:00May 27th, 2018|Categories: About, Blog, Learn, My treatment, Personal resources|Tags: , , , , |

Theo and I continue to establish our new life in Queenscliff and are enjoying the many wonderful new aspects of our new lifestyle. We're also learning to manage the sacrifices. It makes me feel I've turned a corner. Home Then Actually, a couple of weeks ago, I literally did turn a corner. After staying in Melbourne for a special family lunch, during the evening we also managed to catch up with old friends on our old pavement. I kind of felt a little emotional pang when I turned into the city end of Gertrude Street and saw the magnolias enjoying the Autumn evening light and the little drizzle that was beginning. Very steadily pacing my drinks, the night saw us hop around our old favorite spots. The life turn happened when I stepped out of the Everleigh and instead of turning right to head 'home', Theo and I turned left to head to a city hotel. We were going to sleep at this hotel, wake up in the morning and return to Queenscliff. Theo had to work... Sunday. I don't often have overwhelming emotional moments. I really deal with life's activities quite well. I mean, who would I think I was expecting a perfect life run, right? 'Suck it up!' But this was one of those overwhelming emotional moments and it was damn hard. I knew what it was. I knew that overdue moment since we left 'home' had finally caught up with me. I fully comprehended that we had said goodbye, and life had moved us on. I lapped up every step away from my previous home as the rain fell on/off and the concrete took in all the glittery, yellow, autumn Melbourne evening lights. I bid abiento to each magnolia as I walked up the street. I also lapped up the arms that were around me and the huge hug that Theo and I stopped to have to mark our moment. Home Now

March 16th, 2018 12:52 pm

GPADD 2018 Dealing with Addiction Conference – I’m Presenting!

By |2018-07-19T10:35:38+10:00March 16th, 2018|Categories: Learn, Professional, Professional Resources, The pain|Tags: |

GPADD 2018 Dealing with Addiction Conference – I'm Presenting! It's a topic that needs serious attention and I'm honoured to be invited to speak and share my personal experience. My aim is to share the resources that I've found that have helped me avoid dependency, and to share resources that have helped me understand my complex chronic health issue. Education is key for both the patient and the professional in the management of chronic health issues.

November 1st, 2017 2:48 pm

Trust me, I’m a patient: pain education for professionals from a lay perspective

By |2017-12-11T09:19:31+11:00November 1st, 2017|Categories: Learn, Professional Resources|Tags: , |

Unfortunately, it is all too common for the professional not to listen to the patient and not to believe in their pain. The focus on the ‘relief of suffering’ has almost got lost in modern medicine’s search for diagnosis and cure. It is hard enough to be coping with pain, but terrifying not to be believed when one goes for help. It should not take months of suffering and inadequate (or no) pain relief before a patient finally gets to a pain clinic.

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