October 2nd, 2020 3:50 pm

Curious about my Pain Specialist?

By |2020-10-02T15:50:57+10:00October 2nd, 2020|Categories: Learn, Professional Resources|Tags: , |

When I started this website, my hope was to connect people living with pain with healthcare practitioners. At the time (2011), there was no online information or help for Pudendal Neuralgia and other such pelvic pain. I thought if I could provide the information in one place, it would help everyone connect and solve dreaded pain issues or at least speed up the diagnosis and treatment process. I didn't hope it would take nine years. Nine years...!!! But we have arrived and the point is that anyone can access this information session.

September 12th, 2020 12:02 pm

My Lyrica Closure

By |2020-09-12T15:50:18+10:00September 12th, 2020|Categories: Blog, Learn, Professional Resources|Tags: , |

Life's pace is vastly slower if you are living with chronic pain. Anticipated outcomes from things like new treatments, explanations about causes of pain, pain research, realisations about personal ideas relating to my own experience all take months, years and even over a decade to arrive. Yesterday was the day I finally received some closure about the wicked Lyrica. There's been a build-up of medication reporting this past year but none of it hit the spot like The Project's report. I love the reporting on this show – it's one of the few programs that brings me to the TV. While watching last night, I got that bullseye feeling: I'm not crazy! How often does a person living with pain come to this blissful realisation? Not often enough I can tell you.

August 22nd, 2020 1:13 pm

SOOVit

By |2020-08-22T13:13:35+10:00August 22nd, 2020|Categories: Learn, Personal resources|

So many great things happen when you turn 50! Here are some friends I didn’t expect to pop around. But then again, with all the resting on the toilet, endless spasms of [...]

February 1st, 2020 2:22 pm

Buy a Leunig – I’m Donating Profits to Pain Revolution

By |2020-02-02T11:32:57+11:00February 1st, 2020|Categories: Advocacy, Blog, Events, Learn, News, Professional Resources|Tags: , , , , , |

I’m sure you’ll all agree my advocacy for chronic pain has been extensive in my 13-year lived experience. I’ve learned a lot about who to trust, who I should collaborate with and [...]

November 9th, 2019 9:09 pm

Foam! I Found Foam!

By |2019-11-09T21:09:56+11:00November 9th, 2019|Categories: Learn, Personal resources, Tips|Tags: , |

Foam! I Found Foam! Am I excited today! As I progress this path of pain, I retain my non-negotiable pointers – one of which is my need for my custom made seating aid. I would love to ditch this damn thing from under my backside and from my clutch every time I go out for a seated event, but it's just too valuable for my capacity. Figuring out the big 'dangers in me' (remember we talked about DIMS and SIMS?) has been key to my pacing forward.

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