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GPADD 2018 Dealing with Addiction Conference – I’m Presenting!

By |2018-07-19T10:35:38+10:00March 16th, 2018|Learn, Professional, Professional Resources, The pain|

GPADD 2018 Dealing with Addiction Conference – I'm Presenting! It's a topic that needs serious attention and I'm honoured to be invited to speak and share my personal experience. My aim is to share the resources that I've found that have helped me avoid dependency, and to share resources that have helped me understand my complex chronic health issue. Education is key for both the patient and the professional in the management of chronic health issues.

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Pain God, I’ve founded a better way to do things

By |2022-06-09T16:36:33+10:00July 12th, 2017|Blog, Manage, My Health Story, Professional|

Embracing the health care system's push for self managed care I find it difficult to sit still (pun intended), when I can see a way to make a change for the better and to help others. In the case of Pain Train, it was actually creating something that didn't even exist in the chronic pain world. The Gods we look upto had nothing to offer in this area - it didn't exist. So I repeated my story, as you did/do a few million times during the few million appointments. Exhausting! Not to mention impossible. How are patients and their teams meant to manage (you know the thought, surely God doesn't expect me to repeat myself, again!)? Yes, the Gods do expect you to repeat yourself. How else can they help you? Well, there's an easier way for both of you/us!

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Back on the treatment trail

By |2017-12-11T16:29:24+11:00August 11th, 2015|Help, My treatment, Professional|

So someone got talking to someone on a plane (you know how that story goes, your eyes begin to glaze over because you're in pain thinking 'if this friend tells me I need to meet someone and sustain a new friendship, I'm going to punch him' - but in the end, it works out that you wished you had sat next to that someone on the plane, and you meet that person and you wished you had met them a very long time ago (like eight years ago for me).

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Soula Mantalvanos created pudendalnerve.com.au to advocate for people living with Pudendal Neuralgia and other and invisible pain related illnesses. Do you have pelvic chronic pain? Have you had this pain since injury, pregnancy, birth, or some other trauma to your pelvic area? Perhaps you are an elite athlete or cyclist? Does it feel like a toothache, does it itch and gnaw, do you feel like you’re on fire? Do you feel spasms, fluttering and glitchy? Are your toilet and sexual signals and functions irregular? Is there no obvious issue on your x-rays and MRIs? Do you find distraction can often work incredibly but afterwards the pain becomes excruciating? Is the pain often worse after activity rather than during? Do you feel no one quite understands you, your explanations, and your pain descriptions? Have you been told you have a Psychological Condition, and been left to feel like you’re crazy? Do you associate your pain with ringing in your ears and feel you can’t quite pinpoint where it is? Would you say its painful to speak at times and that sounds and speaking hurts? Have you had endless appointments with no relief? Do vibrations, a fright, or bumps send a surge through your spine? Do your legs feel weak? Do you find sitting unbearable? Have you fallen on your coccyx or had an accident, and after years it still feels like it happened yesterday? Are you part of an Australian Workers’ Compensation system and feel you are being treated poorly and that the whole system is like a circus? Do you feel the Australian Workers’ Compensation system can’t help with return to work because the VWA Agent treats you poorly? Do you feel the system is out of date and primitive and has no understanding for Chronic Pain or your situation? Then Soula sadly welcomes you (NOT) to the world of chronic pain. © Copyright 2012 -    |   pudendalnerve.com.au created by ooi   |   Hosted with Digital Pacific
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