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My ‘Fatty’ tail aint fat afterall!

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Fatty TailClosure really is something. Feeling like a niggling concern is finally put to rest can be so satisfying, it brings me such calm.  Slowly, my pelvic chronic pain niggles are finding their place and providing me with the peace my body and mind needs so I can let go, move on and most of all feel my injury is clearly understood.

I had another session with the wonderful Raffaele who continues to treat me fortnightly. I was ready to call the next nerve block last week but after yesterday I’m hopeful again and thinking I was in some kind of a flare. I can’t expect (but I will!) that with my effective management flare ups will cease to happen. As I test my capacity and lift my full litres of milk occasionally, walk the dog and go out more often, I’ve got to expect at some point the body is going to say, ‘hang on love, you’re lifting too much milk!’ Continue Reading

Next stop: Traditional Chinese Medicine with Raffaele Vavala

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Acupuncture6Although I’ve tried acupuncture many times before, I’ve never felt as much of a response as I am feeling now after my four sessions with Raffaele Vavala. It’s possible my body wasn’t ready for it, being in ‘the thick of it’ until about a year ago my onion was just too big!  But I also believe some practitioners do have more of a gift than others and Raffaele is gifted!

The consultation methods make great sense to me. My scans have been considered, but my tongue, palms and pulses on both wrists do all the pain and story telling. These body parts describe a system that is quite debilitated after dealing with the years of Chronic Pain, an issue Raffaele understands in-depth. So when I speak of sounds hurting, activity accumulating into a flare up fire-ball, fluid retention, my legs unable to move with extreme heat conditions, the desperation for Western intervention in the form of an implant and nerve blocks, my exhaustion that arrives with the pain and ‘protects me’ by encouraging me to sleep, the inability to focus, reach out and ‘just move that thing’ or carry out a simple task, the ability to create seeming too exhausting, Raffaele understands… ALL OF IT.  He reminds me of my diagnosing physio, and for once I’m the one staring in disbelief at their look of complete understanding for me (when other practitioners screwed up their faces or frowned at my statements). Continue Reading

Subject: Fair Assessment for Compensation?

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For those subscribed to this Fair Assessment For Compensation post, I have had a reply and it is posted here!

AN OPEN LETTER TO WORKSAFE AUSTRALIA

(CC’d The Hon Gordon Rich-Philips)

SUBJECT: FAIR ASSESSMENT FOR COMPENSATION?

My name is Soula Mantalvanos and I am an injured Australian worker ever since an unfortunate incident in March 2006 where the fitball I was sitting on burst and I fell on to concrete. I was diagnosed after 4.5 years, with a painful condition that is often misunderstood; it is Pudendal Neuralgia (specifically Pelvic Chronic Pain).

MedicalPanels

Obviously you will be able to imagine the difficulties I have had in the WorkCover system with such an injury. Six years down the track, at the age of 43, I am left without weekly payments and an impairment score of 0%. I seriously question whether I’ve ever been assessed fairly.

In the Preamble of the National Workers’ Compensation Action Plan 2010-2013, a paragraph (b) recommends providing “fair” compensation for work-related injury, illness and death. As far as I can ascertain, “fair” means “marked by impartiality and honesty, as well as free from self-interest, prejudice, or favouritism.” Does this definition coincide with that intended by WorkSafe Australia? Continue Reading

Do I dare put it in writing…?

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Happy… post nerve block No. 3.

I’m at 5.3 weeks and have managed to walk a few days in a row, practice some extremely mild yoga and have a few meals out without the pathetic fire warning in my pelvis. Could it be? Could it really be? Here’s hoping 2013 begins with some pain free magic.

Right now, I feel like this… and I wish that everyone who comes across my website, or is a regular reader feels the same. If not, please, remain hopeful.
(Read about Nerve Block No.3)

Happy post nerve block No.3...

Building blocks… I hope!

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BlockFeature

I’m not yet clear about the effects of Nerve block No. 3, but I’m calling it… I’m going to be positive… I believe I’m building! It’s just a sorta three steps forward and two back situation.. I hope.

So far, my building blocks go like this:

My current situation is a life setup based on my husband Theo’s help all day. I could not have returned to work without his help or the home/office setup we have. I’m still not driving and my weight limit goes from 0 – 3kg. I haven’t established a regular basic living routine (this includes a daily walk), still unreliable to myself!

Continue Reading

Take a seat… if you can!

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Soula's Seat Pile

With Pudendal Neuralgia, or any other pelvic chronic pain issue, it can be impossible to sit pain free (let alone get away without a flare up).

Of course, I’m no pro when it comes to seating, but I’ve learned a lot from my own experience and from listening to the ‘ouch’ in my pelvis. The seating I needed, was most often hand-made! (Have a look at the one my gorgeous father in law made, it’s the stool with adjustable foot rest!)

Although I’ve worn out, thrown out, tried and tested so many more seating aids, I’m showing the ones that have lasted or worked for a while. These are the ones I often resort to when things are getting heated again. Continue Reading

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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