December 15th, 2011 7:08 am

My pre pain life…

By |2022-09-05T11:26:10+10:00December 15th, 2011|Categories: About, Creativity, Living, The pain|Tags: , |

I was active, I had capacity, boundless energy to execute my creative thoughts (and meet the expectations of a full social calendar!). I worked veeeeery long and wonderful days, I walked everywhere, lunching, dining, starting every day at a local cafe, picking up art materials, walking the dog, running the dog, to Carlton, the city, Fitzroy, I skipped through the streets of the great arrondissements of Paris when on annual holidays, and swore by my four day a week yoga routine that unravelled my body and had me feeling like Gumby warm to the ends of my extremities... There was no 'tired', 'sore', 'fatigued', 'have to rest', there was no 'pain'. Like I said, it was bliss.

December 3rd, 2011 1:31 am

Who says I can’t travel?

By |2014-06-15T08:50:38+10:00December 3rd, 2011|Categories: About, Funnies, Living, Manage|Tags: , |

I know I might be clutching at straws again but at the very least 360 cities is some great distraction and very light in capacity cost. And it's great planning for next time I have some serious pain relief (like a nerve block). I'll be off like a rocket! Ok, maybe not a rocket but compared to the usual pace it'll feel like it.

November 29th, 2011 4:57 am

Donate

By |2017-12-15T15:56:11+11:00November 29th, 2011|Categories: About, Advocacy, The pain|Tags: |

No donations necessary but if you are a health org and would like to support the cause I would certainly appreciate the sponsorship. Everyone else just blab your head off if the site has been a help to you. If you can provide more information and new resources then please use the contact form and let me know. Quickly!

November 29th, 2011 2:24 am

Depressed? You have to be, you just have to!

By |2013-10-14T11:07:48+11:00November 29th, 2011|Categories: About, Manage, My treatment|Tags: |

I remember friends, family, practitioners asking me how I was... "how am I?", I didn't know who I was let alone how I was!!!!!!!! I couldn't cross the street, had to turn spell check on my computer, couldn't speak from the piercing sound of my own voice bouncing in my own ears, couldn't go out, couldn't coordinate myself, I thought everyone who drove was going to kill themselves I was so disorientated all the time, and I couldn't choose between three apples if you asked me to! I slept like a dead person, had no energy, I took a huge dive into the deepest of caves. Actually to sum it up folks, I was depressed... yes, on the anti depressants. That was enough for me to see I didn't need that sort of medication. There had to be another way and I found it.

November 26th, 2011 5:12 am

Why a flower?

By |2022-09-05T11:26:10+10:00November 26th, 2011|Categories: About, Creativity, Living, Manage, The pain|Tags: , |

Chronic pain is a waste of life’s precious time, its a huge hold up. But if you have to deal with it then you have to find a way to cope through the awful journey and survive it. Before my precious implant (Professor Teddy I love you!!), I couldn’t move much without pain, everything hurt and it hurt all the time. And yet, my gorgeous friends and family kept telling me ‘but you look so good for someone who’s in pain all day!’ (Uum… thanks??).

November 25th, 2011 1:00 am

Down the hole: a descent into painful isolation

By |2021-02-24T10:28:34+11:00November 25th, 2011|Categories: Advocacy, Creativity|Tags: , |

Chia Moan's painting Shrinking World aims to shed light on the effects of living with severe and persistent pain. Moan was among artists who spoke to pain sufferers and says she remembers one patient who said she felt like Alice disappearing down the rabbit hole, with the opening at the top growing smaller and smaller.

November 23rd, 2011 7:18 am

Art and distraction

By |2022-09-05T11:26:11+10:00November 23rd, 2011|Categories: Creativity, Learn, Living, Manage, My treatment, Personal resources|Tags: , , , |

My creativity has been one of my main coping mechanisms through my chronic pain life. It's the place I go to feel free, release the steam, express my pain, and to get distracted to the point of pain! But it's worth it every time. There isn't a lot I can achieve with my capacity so one drawing, one painting over months, one post on my blog... anything, it's all worth it.

November 21st, 2011 9:23 am

Pain loops, syndromes and an over protective brain

By |2022-09-05T11:26:11+10:00November 21st, 2011|Categories: About, Creativity, Funnies, Manage, The pain|Tags: , |

How many definitions for pain signals are out there? It doesn't stop and I have to be really honest here, it all sounds like hogwash for a person who was unstoppable and prior to her injury had the stamina of a bull (as a friend once described me).

November 19th, 2011 10:41 am

Diagnosis: Physiotherapy at the Women’s

By |2023-02-17T10:32:01+11:00November 19th, 2011|Categories: Help, My treatment, Professional|Tags: , , , , |

It felt like a miracle and took all of about 15 minutes for the phsyiotherapist (at the chronic pelvic pain clinic at the Women's here in Melbourne Australia) to give me her French infused explanation that my pain was most probably coming from my Pudendal Nerve (yes, a name, I had a name!). It took another 15mins for her to put me in on my back (I never lay on my back as it was too painful) and apply a pressure/postural technique that switched my pain off! (Yes, OFF... calm, silence, stillness, roar gone, no spasm, quiet, peace)... unbelievable but this is true.

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