FacebookInstagramLinkedInTiktokXVimeo

About Soula Mantalvanos

“I felt I had lost my independence, I could not communicate and express my personal experience and that no one understood me.” Soula combines her many years of chronic pain with her professional design experience to advocate about misdiagnosis and injured Victorian workers. Soula founded pudendalnerve.com.au and PainTrain My Health Summary to help raise the quality of care for those enduring and treating chronic pain.
Email
December 16th, 2021 1:17 pm

Off you go 2021…

By |2021-12-16T13:17:55+11:00December 16th, 2021|Categories: Blog|Tags: , |

I'm so hopeful for 2022 because I can now so confidently say, 'I can't make it IRL, can we zoom?' without apology or explanation. And, this year it also got a whole lot easier to slap down my cushion in the middle of a full restaurant... and sit on it. It's also become easier for others to understand why I couldn't be somewhere and it became hilarious listening to people rave about online shopping (hello, we've been doing it for years, even before it was all setup online officially). I bet you can rattle off many examples of feelings of inclusiveness – even the word inclusiveness managed to pop up on this website for the first time, where until now, all we could talk about were our exclusions and how foreign we felt within the world.

December 3rd, 2021 2:49 pm

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

By |2022-11-26T20:58:48+11:00December 3rd, 2021|Categories: Advocacy, Blog, Events, My Health Story|Tags: , , , , , , |

It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who [...]

November 26th, 2021 1:12 pm

Presenting at the Murray City Country Coast GP Training Event

By |2022-11-26T20:58:48+11:00November 26th, 2021|Categories: Advocacy, Events, Learn, Professional Resources|Tags: , , , , , |

There are no formal qualifications for someone living with chronic pain but patients are considered 'patient experts' and our lived experience is very much valued. I've been invited to several seminars and training sessions relating to chronic pain over the course of my 14-year experience. It's of great significance for me to be able to use the lived experience – no other value for it really!

November 13th, 2021 11:21 am

Rosemary McKenzie Ferguson, Australian Injured Worker and founder of Craig’s Table takes top 2021 Comp Laude® Award

By |2023-01-24T16:12:26+11:00November 13th, 2021|Categories: Workcover|Tags: , , , |

Virtual Ceremony Reveals 2021 Comp Laude® Award Winners My beautiful friend Rosemary McKenzie Ferguson, so deserving of your tireless efforts for Australian Injured Workers. The sky is the limit now! Australia, might [...]

November 13th, 2021 11:03 am

NSW insurer icare apologises for underpaying injured workers $38 million

By |2023-01-24T16:12:26+11:00November 13th, 2021|Categories: Workcover|Tags: , , , |

With two damning reports by the Victorian Ombudsman, WorkSafe Victoria and their greedy Insurer mates still find a way to avoid liability for their crimes – yes, crimes! I'm owed at least a few years of my wages while fighting the system – and the rest! Having to sell my home and use it as equity to start a new life due to the lack of support and unethical actions by WorkSafe and thei Insurers. The Victorian Government also escapes liability by allowing WorkSafe and their insurers to act unethically and by assigning an organisation to pretty much legislate itself. I was truly ecstatic to read this article and can imagine the relief of NSW injured workers to finally be able to move past the devastating treatment, trauma and hardship behind them... hopefully! This type of unjust treatment leaves a lot more damage than the injuries we endure at work. Unacknowledged as if we were a third world country. Shameful of Australia... except for NSW! (NSW insurer icare apologises for underpaying injured workers $38 million by Danuta Kozaki Posted 

The chief executive of the New South Wales government's troubled insurer, icare, has apologised for underpaying tens of thousands of injured workers to the tune of millions of dollars.

Key points:

  • A total of 53,000 injured workers in NSW were underpaid.
  • icare will repay $38 million to those affected
  • The chief executive of icare has apologised for the errors
October 26th, 2021 4:44 pm

Enlightenment For Pain Labels

By |2021-10-27T12:30:38+11:00October 26th, 2021|Categories: Learn, Professional Resources|Tags: , |

Enlightenment For Pain Labels What a breath of fresh air this information is! Some of the things I learned reading The Lightning Process have stuck with me, like being able to tip my head under the tap to rinse my mouth after brushing my teeth. I better explain that.

My Health Story now in your app store

MHS tablet

Pelvic Sense

GET STARTED (use ‘HELLOPS’ to get a Soula discount).

Soula Mantalvanos created pudendalnerve.com.au to advocate for people living with Pudendal Neuralgia and other invisible and chronic illnesses. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. The website includes topics about chronic pain, pelvic pain, pudendal neuralgia, injured workers, workers compensation, inflammation, chronic illness, patient empowerment, self efficacy, better healthcare, nerve pain, various treatments such as nerve blocks, neurostimulation implants and the courage that is required for self management. All information on this website is a account of Soula's lived experience and should not be taken in anyway as advice or recommended treatment for any other person or healthcare professional. Chronic illness is a unique experience and therefore requires better understanding and tailored care. © Copyright 2023 -    |   pudendalnerve.com.au created by ooi   |
FacebookInstagramLinkedInTiktokXVimeo
Go to Top