Your symptoms & history indicate that the nerve in the pelvis, the pudendal nerve, may be responsible for all or some of your pain and other symptoms. The pudendal nerve runs from the lower back, then passes between 2 ligaments, then runs along the top of the pelvic floor muscles, then through to the base of the pelvis the pelvis and out to the perineum. Adjacent to the ligaments are muscles: the pelvic floor muscles (PFM) at the front and the obturator and piriformis at the back.
I was referred to two pain management centres in Melbourne. One doctor was happy with my own pain management routine and the other team asked that I agree to accept responsibility for my chronic pain and that I will forget having future x-rays, mri's etc. if I was going to participate. Well as if I was going to go for that? As reputable as the centre was it didn't sound right for me and as it turned out, it wasn't. This sounds a little more appropriate for me.
It felt like a miracle and took all of about 15 minutes for the phsyiotherapist (at the chronic pelvic pain clinic at the Women's here in Melbourne Australia) to give me her French infused explanation that my pain was most probably coming from my Pudendal Nerve (yes, a name, I had a name!). It took another 15mins for her to put me in on my back (I never lay on my back as it was too painful) and apply a pressure/postural technique that switched my pain off! (Yes, OFF... calm, silence, stillness, roar gone, no spasm, quiet, peace)... unbelievable but this is true.
The most supported I've felt is when I've come across a practitioner who listens and wants to work with me specifically. I mean really take note of what's going on and want to learn themselves too. Chronic pain is still [...]
In my case, the procedure was much less complicated as I didn't need the leads to go through the spinal canal but rather along my sacrum and coccyx. There is a trial period in which the unit sits outside and is 'plugged in' via the leads that, yes, are sticking half out/half in your body. Look I know that might sound gruesome to some but please... we're talking about chronic pain here... it was NOTHING. A cinch... it worked, it's in now and giving me great pain relief.