October 2nd, 2020 3:50 pm

Curious about my Pain Specialist?

By |2020-10-02T15:50:57+10:00October 2nd, 2020|Categories: Learn, Professional Resources|Tags: , |

When I started this website, my hope was to connect people living with pain with healthcare practitioners. At the time (2011), there was no online information or help for Pudendal Neuralgia and other such pelvic pain. I thought if I could provide the information in one place, it would help everyone connect and solve dreaded pain issues or at least speed up the diagnosis and treatment process. I didn't hope it would take nine years. Nine years...!!! But we have arrived and the point is that anyone can access this information session.

September 12th, 2020 12:02 pm

My Lyrica Closure

By |2020-09-12T15:50:18+10:00September 12th, 2020|Categories: Blog, Learn, Professional Resources|Tags: , |

Life's pace is vastly slower if you are living with chronic pain. Anticipated outcomes from things like new treatments, explanations about causes of pain, pain research, realisations about personal ideas relating to my own experience all take months, years and even over a decade to arrive. Yesterday was the day I finally received some closure about the wicked Lyrica. There's been a build-up of medication reporting this past year but none of it hit the spot like The Project's report. I love the reporting on this show – it's one of the few programs that brings me to the TV. While watching last night, I got that bullseye feeling: I'm not crazy! How often does a person living with pain come to this blissful realisation? Not often enough I can tell you.

February 1st, 2020 2:22 pm

Buy a Leunig – I’m Donating Profits to Pain Revolution

By |2020-02-02T11:32:57+11:00February 1st, 2020|Categories: Advocacy, Blog, Events, Learn, News, Professional Resources|Tags: , , , , , |

I’m sure you’ll all agree my advocacy for chronic pain has been extensive in my 13-year lived experience. I’ve learned a lot about who to trust, who I should collaborate with and [...]

December 13th, 2018 12:45 pm

Spinal Cord Stim Trial Day 6

By |2023-02-17T10:32:00+11:00December 13th, 2018|Categories: About, Learn, My treatment, Professional Resources|Tags: , , , , |

I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!

Go to Top