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November 24th, 2011 6:33 am

Women’s Health and Research Institute of Australia (WHRIA)

By |2017-12-11T09:30:20+11:00November 24th, 2011|Categories: Help, Learn, Professional, Professional Resources|Tags: , |

Your symptoms & history indicate that the nerve in the pelvis, the pudendal nerve, may be responsible for all or some of your pain and other symptoms. The pudendal nerve runs from the lower back, then passes between 2 ligaments, then runs along the top of the pelvic floor muscles, then through to the base of the pelvis the pelvis and out to the perineum. Adjacent to the ligaments are muscles: the pelvic floor muscles (PFM) at the front and the obturator and piriformis at the back.

November 24th, 2011 4:29 am

Pain as an Art Form

By |2021-02-24T10:28:43+11:00November 24th, 2011|Categories: Learn, Manage, Personal resources|Tags: , , |

Mr. Collen said the main goal of the exhibit is to raise awareness about the problem of chronic pain. However, he said he hopes one day to find a sponsor to take the exhibit on tour. “People don’t believe what they can’t see,” Mr. Collen said. “But they see a piece of art an individual created about their pain and everything changes.”

November 23rd, 2011 7:18 am

Art and distraction

By |2022-09-05T11:26:11+10:00November 23rd, 2011|Categories: Creativity, Learn, Living, Manage, My treatment, Personal resources|Tags: , , , |

My creativity has been one of my main coping mechanisms through my chronic pain life. It's the place I go to feel free, release the steam, express my pain, and to get distracted to the point of pain! But it's worth it every time. There isn't a lot I can achieve with my capacity so one drawing, one painting over months, one post on my blog... anything, it's all worth it.

November 21st, 2011 8:00 am

David Butler and Lorimer Moseley discuss the first five years of Explain Pain

By |2017-12-11T10:19:05+11:00November 21st, 2011|Categories: Help, Learn, Professional Resources|Tags: , , |

Explain Pain has been a huge stepping stone for patients and clinicians - not only in understanding pain but being able to communicate the concepts to others. Over 5 years on, and the book is still unprecedented in its layout, descriptive illustrations and incredible bank of information. Backed entirely by scientific evidence, Explain Pain is a recommended text at many universities but also read and enjoyed by everyday people in pain.

November 21st, 2011 7:28 am

Anatomical images

By |2022-03-17T09:54:36+11:00November 21st, 2011|Categories: Help, Learn, Professional Resources|Tags: , |

I've always been curious and I wanted to understand and visualise my area of pain but for 4.5 years that wasn't possible as I was never diagnosed accurately and didn't have the visual reference in my head either. From my yoga practice I remember sending the breath to different areas of my body and it was not only relaxing, but it I felt I was sending great energy to that area... sort of loosening it up, relaxing, letting go. I wanted to get back to that after diagnosis and I found this brilliant resource to help me do just that.

November 20th, 2011 3:06 am

Help? Yes please

By |2012-01-16T07:17:31+11:00November 20th, 2011|Categories: Learn, Manage, Personal resources|Tags: , |

This shouldn't take too long to grasp but I understand it may take a little while to actually put it into motion... Not used to having help hey? Well I wasn't either, never needed any. But once I realised I could get more out of my day by learning "Yes please", it got easier to say it. In fact I ask for help now. I even leave things on the floor if its a bad day (just push it aside with my foot, it'll be dealt with later) because I realise it means more capacity to do other things and LESS PAIN. Of course this only applies if you have help...

My Health Story now in your app store

MHS tablet

Pelvic Sense

GET STARTED (use ‘HELLOPS’ to get a Soula discount).

Soula Mantalvanos created pudendalnerve.com.au to advocate for people living with Pudendal Neuralgia and other invisible and chronic illnesses. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. The website includes topics about chronic pain, pelvic pain, pudendal neuralgia, injured workers, workers compensation, inflammation, chronic illness, patient empowerment, self efficacy, better healthcare, nerve pain, various treatments such as nerve blocks, neurostimulation implants and the courage that is required for self management. All information on this website is a account of Soula's lived experience and should not be taken in anyway as advice or recommended treatment for any other person or healthcare professional. Chronic illness is a unique experience and therefore requires better understanding and tailored care. © Copyright 2023 -    |   pudendalnerve.com.au created by ooi   |
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