Change of Rhythm
I’m going to change things a little on the site. There’s been a build-up of pressure relating to advocacy in the past year. I gave it up and [...]
August 18th, 2020
11:09 am
October 6th, 2019
1:11 pm
It’s Been a While… So How am I?
Being resourceful is what makes the difference — it is so hard working life out. But Theo and do it. We burrow down and we make it happen. There's no choice... or rather there was but I didn't want a fulltime WorkSafe paycheck. Of course, I think about that. And of course, I often call myself stupid for declining it – I was safe! I had that full-time paycheck for the rest of my life. But creativity and sharing the day with Theo is so precious to both of us. Even with the complexities and risks, it appears to be the only way Theo and I can live. For this, I am grateful! So I'll stop complaining now and go on with what I've been doing and what I am achieving. It's all good! I'm moving. Life is in forward motion after being so still for so long – a decade at least!
January 2nd, 2019
11:34 am
Wishing you Stitches of Laughter for 2019
If it weren't for my sense of humour, I'd be well and truly dead a long time now. I thought I'd kick off 2019 with something Theo found that is (not, IS, not, IS) so funny. Wishing you all stitches of laughter for 2019... xx Theo & Soula
June 10th, 2013
10:35 am
Sharing Barry’s experience with Male Pudendal Neuralgia
I've lived here in Delaware since December 2011 and have not had a block since. I already had 6 Pudendal Nerve blocks and this after so many other procedures: 5 Ganglion Blocks, 6 Caudal Blocks, 2 Botox injections, 2 Radio Frequency Ablations, 2 Neurostimulator Trials, an Interstim Impant, and then the 6 Pudendal Nerve blocks. Endless research and finally putting the right two words together on Google, opened up the world of Pudendal Neuralgia (Neuropathy) to us. That was near the end of December 2010. On the day after New Years and in response to two letters I sent to two Dr's names I had found, I got calls from both Dr’s the same day.
April 15th, 2013
9:23 am
Interpretive Dance about living with IC & Pelvic Pain
An incredibly effective form of communication for Internal Cystitis (IC) and Pelvic Chronic Pain. Certainly captures everything I’ve felt and everything I hope; release those chains! And how true that they are [...]
July 6th, 2012
1:18 pm
Inspiration from Henri Matisse
Henri Matisse, in his own inspiring words. Creativity takes courage. Derive happiness in oneself from a good day's work, from illuminating the fog that surrounds us. Work cures everything.