September 30th, 2013 5:34 pm

Theo and I, live on The Scheme Project’s broadcast

By |2023-01-24T16:12:32+11:00September 30th, 2013|Categories: Workcover|Tags: , , , |

Doing my bit again for injured workers and hoping that sharing my story will bring positive change to the primitive Workers Compensation system in Australia. Both Theo and I attended today's live [...]

September 3rd, 2013 10:12 pm

John Quintner

By |2022-03-21T12:11:32+11:00September 3rd, 2013|Categories: Learn, Professional Resources|Tags: , , , , |

I've made some great friends in cyber space throughout this PN pain journey (and developed quite a library along the way!). One friend I consider a favorite is John Quintner. He's one of my most reliable sources when I need an honest opinion. We bump into each other over two main mutual 'interests': the (primitive) WorkCover assessment methods, and pain definitions. John doesn't just know what he's talking about, he's upfront, honest and calls it how he sees it. And when someone has these credentials, I'm all ears, not to mention I become much wiser!

July 7th, 2013 11:47 am

Reply to my ‘Fair Assessment for Compensation letter’

By |2023-01-24T16:12:33+11:00July 7th, 2013|Categories: Workcover|Tags: , , , , |

After speaking with Kris Vanston I now know that injured workers do have the Victorian Ombudsman to turn too for unfairness issues within the WorkCover system. I had my doubts about contesting my impairment score of 0% (that was deemed permanent I might add), as I am very well aware and have ranted aplenty about Chronic Pain NOT being acknowledged in the guidelines that are used to assess injured workers. That means there is Australian legislation (I'll rephrase; it is legal) for WorkSafe practitioners to ignore Chronic pain, thus Pudendal Neuralgia. No where within the system will any WorkCover practitioner be able to assess an injured worker's Chronic pain. I'm experiencing the result of this, I've been living this ignorance since March 2007. I wrote a letter that was ignored for a few months by our WorkCover Minister, WorkSafe and SafeWork Australia. The Victorian Ombudsman employee informed me not to use the 'info' email address but rather the 'enquiries' one when I'm writing to WorkSafe. Ridiculous but he was right and I eventually received a response. (Enter sarcasm) I now feel completely healed and completely relieved with the empty response I received. It managed to 'acknowledge', 'agree', 'assure' and confirm all the points relating to this outdated system that I initially made in my letter. I'm also more at ease knowing everyone who assessed me ignored all my symptoms and inabilities and that was legal. I'm also proud of the staff at WorkSafe who are happy to abide by ignorant and narrow-minded measures that would also apply to them in the event they injured themselves at work. Above all, I'm in awe of the WorkSafe staff and all related employees and practitioners who's reports are so loyal and discerning of these out-of-date AMA4 guidelines (with pain chapter removed), and The Accident Compensation Act 1987. This template response clearly indicated to me that anyone with chronic pain and with any of the following symptoms/limitations, as a result of a workplace accident will not get compensation: affected toilet function, spasms where you really don't want them, sensory pain (in my case throughout the pelvis), toothachey nerve pain, weakening legs, burning, zinging, if you have limited sitting ability, if you are limited in walking, standing, working, lifting, bending, exercising, if you have an implant as a result of pain (or even if you need one for that matter), if you rely on daily help, if you can't drive, shop, sit and type this damn email in one hit etc etc...! Well thank you WorkSafe for the 'quality' protection you promise. And Heidi just one question, would this letter have been acceptable for you if you were in my shoes?

June 26th, 2013 2:01 pm

The Design Files

By |2017-12-11T14:28:45+11:00June 26th, 2013|Categories: About, Creativity, Living, Online|Tags: , , , , |

...I'll clarify now, this post is a very positive one. It's about standing up, facing the world which requires courage, strength, being understood, supported, alot of struggle, and a damn load of management skills. ... not only did Lucy Feagins share our creativity on her brilliant blog, but her address and understanding of our space and lives couldn't have been more spot on or more supportive of PN. It puzzled me that Lucy could understand it when others struggle so much. ... I want judgement to stop. People in pain shouldn't have to say more than 'I suffer chronic pain'. It's harmful and prevents people in pain from going out when they're feeling ok, or rather when they can withstand their pain. If their houses are really tidy, that means they have help. If you see them socialising in one place, doesn't mean they can make it to the next. We are able to smile, we can move, we can walk, we can stand, just not alot. We don't hunch, in fact our practitioners teach us to have great posture, we might sit funny, walk slow, not carry much, and stare as you may you won't see our pain. If we appear somewhere and look great, we planned for that and it took alot of sacrifice and help. If you have doubts, keep them to yourself please because there's no doubt in our mind we're in pain.

May 31st, 2013 3:17 pm

The Scheme Project

By |2023-01-24T16:12:33+11:00May 31st, 2013|Categories: Advocacy, News, Workcover|Tags: , , , , , |

You can all imagine why The Scheme Project caught my attention and you can all understand why my pledge was not only made in seconds it was supported (and increased) by my husband Theo who equally saw the benefits in Kris's project. As frustrating as it is being left without any income and medical support after my workplace accident and having my fair share of rants to expose, I actually appreciated Kris's professional approach to his project and his intent to make the documentary up front but not personal. He's not looking for tantrums, witch hunts, singling out of fraudsters and unethical behaviour but rather aiming at exposing the realities in hope of making a change. At the end of our conversation we both agreed that life's great knowledge of 'health first' doesn't seem to be part of WorkCover's culture. The support just isn't there, not in treatment, not in standards, not financially and certainly not in return to work. What does Kris need? Your signatures and your pledge (pledges are not collected unless Kris reaches his target). 'You' may be an injured worker, family member of an injured worker or employer, a treating practitioner, medical examiner, conciliator, lawyer, investigator, WorkSafe agent staff member, Minister, anyone associated with the WorkCover system in fact any worker or employer, we all deserve better quality protection.

February 25th, 2013 9:18 am

(Hardly) Happy 1st birthday pudendalnerve.com.au

By |2017-12-11T16:51:16+11:00February 25th, 2013|Categories: Blog, Living|Tags: , , |

Well it's hardly a birthday celebration! But certainly a time to reflect and assess myself and the achievements of PudendalNerve.com.au. The total visits in 12 months total an astounding 21,500 and the search terms are a clear indication that still, so little is understood of Pudendal Neuralgia worldwide. The first note must be of thanks and of course, has to go to my husband Theo. Without Theo's daily help this site simply wouldn't be up and running.... neither would I! Second note worthy thank you, and certainly something that can be celebrated, has to be the beautiful connections I've made in the past year. I've met the most inspiring, energising, kind, compassionate people, whether practitioners, therapists, chronic pain sufferers, or people attached to the pain system, you have been my encouragement and empathy. Your pain and/or knowledge inspire me to continue and get to the bottom of this dreaded pain issue (in the hope of resolving it not only for me but for all of us!), and/or try to voice my improvements for an ignorant WorkCover system. As far as my personal 1st year status goes, I definitely have 'progress' to celebrate; I'm running on Nerve block no. 3, refreshing my pelvis as required with a newly installed bidet, taking minimal amounts of Endep, in much less pain but still much limited with capacity and in need of daily help. Although I still need regular massage, I'm able to work a little from an accommodating home setup, thinking a lot more, delegating-delegating-delegating and finally, but not least, have taken a plunge into the wonderful world of Chinese Medicine which I believe may finally be able to reach my pain. Stay tuned for another update on that soon. (image) Nerve Block Cake & Candle To sum up, here are some stats that may be of interest to my subscribers and visitors (and my very loyal spies!).

November 28th, 2012 9:05 am

Performance ‘fit for modified duties’

By |2023-01-24T16:12:33+11:00November 28th, 2012|Categories: About, The pain, Workcover|Tags: , , |

Did you all hear I'm back at work part time? Much thanks to our flexible home/office setup and Theo's immense help. Regardless, how lucky am I hey? But oops, hang on, I have to correct myself. It's not lucky for me, it's lucky for the WorkSafe Agent. And I must clarify because from their point of view I didn't get myself back to work, it had nothing to do with my research, the practitioners I found, their treatment and great therapies (or my hip pocket!). Nope, nothing to do with nerve blocks and medication, but rather, my high activity levels. Yeeees, I have been a full time artist and I've been caught red-handed!!! Well I'm sick of this crap! And this time, the story isn't going to end with me feeling anxious and swallowing those bits of paper, while the Investigators excuse themselves gutlessly with a letter marked 'Private and Confidential' that they send to the WorkSafe Agent. It's going to end here, on my blog. And I'm even going to have some fun while I'm at it! ...And if you're an investigator wanting to comment, don't bother! Your comments will be deleted. As I said, this time the story ends with me.

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