I was going to title this blog Fatigue, but after reviewing it repeatedly, I decided to title it Stamina instead.
It took me years to get to 'managing'. Now I have transitioned to pacing. As stated in my previous post, I'm living now. I'm not in a passive state watching and being attacked by an unpleasant experience.
It wasn't easy getting to the state of 'management'. There are so many 'have to' activities – we can't avoid these.
When I explain my 'have to' activities such as showering, making a coffee, sitting/standing all day, dressing, etc., people look at me bewildered, but you'll get me.
Until this fight is experienced, one can't understand that day-to-day activities can strip your energy and count as 'activity'.
It feels insane when faced with this realisation.
But I have found a way...