Suck it up and smile – it’s holiday time!
Yippee!! Not! It’s too hard. I was dreading Christmas – like I usually do. And I’m dreading New Year’s eve and day – as I usually do. And even though I would [...]
December 28th, 2016
1:10 pm
July 3rd, 2016
10:26 am
Adventures of a stim controller
Ever wondered what a stim’s controller’s day looks like? Firstly, let me clarify that I’m talking about my Boston Scientific Sacral Stimulation Implant controller (BSSSIC), not my St. Jude’s Peripheral Stimulation Implant [...]
June 27th, 2016
7:48 pm
Time to exercise – but how?
It took six full months for me to feel I was ready to have my follow up appointment with Dr Nick Christelis after my Sacral Stimulation Implant. I got a few ticks [...]
June 12th, 2016
9:52 pm
Who am I going to be – Soula ‘a’, ‘b’ or ‘c’?
My new stim’s changed everything. I’m grateful. Can you imagine if the whole process (from trial to permanent implant) hadn’t change anything? In addition to the stim changing everything, I’m living a [...]
December 28th, 2015
11:47 am
I made a gallery
True! Theo and I made a huge life move as many of you have read. Our transition began over a year ago when we escaped to Tasmania [...]
October 24th, 2015
5:26 pm
My pain management is turning into a thesis!
It’s taken almost 9 years but I’ve realised that chronic pain requires alot of study – dare I say never-ending study? I believe my research for pain relief for chronic pain may [...]
September 28th, 2015
8:18 pm
How can you know? There might be better treatment out there!
I know that living with pain for over eight years reduces confidence and belief. It even (warning, I'm going to use the C word), discourages hope for a cure. But how could I have assumed I found my best self for four years (nearly five actually, gulp!)?
August 11th, 2015
10:35 am
Back on the treatment trail
So someone got talking to someone on a plane (you know how that story goes, your eyes begin to glaze over because you're in pain thinking 'if this friend tells me I need to meet someone and sustain a new friendship, I'm going to punch him' - but in the end, it works out that you wished you had sat next to that someone on the plane, and you meet that person and you wished you had met them a very long time ago (like eight years ago for me).
June 28th, 2015
10:02 am
Peripheral Stim messing with my bone density score
Thinning bones at the age of 43. That's not good, in fact I landed, once again, in that unique and very small group of patients with a rare condition...
May 8th, 2015
12:05 pm
Appearances can be Deceiving
Frida, ...a woman who used fashion to channel her physical difficulties into a courageous statement of identity, strength and beauty. Exhibition by ISHIUCHI MIYAKO