About Soula Mantalvanos

“I felt I had lost my independence, I could not communicate and express my personal experience and that no one understood me.” Soula combines her many years of chronic pain with her professional design experience to advocate about misdiagnosis and injured Victorian workers. Soula founded pudendalnerve.com.au and PainTrain My Health Summary to help raise the quality of care for those enduring and treating chronic pain.
May 2nd, 2015 2:45 pm

This Train is Bound for… Wholeville: A Travel Guide for the Perplexed

By |2017-12-17T12:37:26+11:00May 2nd, 2015|Categories: Learn, My Health Story, Professional Resources|Tags: , , |

Here are some of the important messages that we hope you have taken on board: Your brain can be a powerful tool to help you manage your pain experience. Like all of our life experiences, that of being in pain can be changed. You are not to blame for your persistent pain. You can experience pain without evidence of tissue damage and not experience pain when tissue damage has occurred. Drugs (or needles) alone are not the answer. The “third space” engagement gives you the best possible opportunity to better manage your pain. Consider embracing the whope model of care. Could this be your slogan? Know pain, know thyself!

March 25th, 2015 12:11 pm

Pelvic Pain Foundation of Australia’s Melbourne launch

By |2017-12-11T15:12:07+11:00March 25th, 2015|Categories: Advocacy, Blog, Help, Professional|Tags: , |

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA)'s Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014. I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I've 'e-met' many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN. Needless to say, last night I went on a magic carpet ride!

February 18th, 2015 12:41 pm

SBS Insight: Ouch!

By |2017-12-11T13:11:42+11:00February 18th, 2015|Categories: Learn, Professional Resources|Tags: , , |

As usual, I was waiting for a lead. Waiting to hear that someone with chronic pain had found a way out of it and was cured. Mrs Gleeson, I could have bet you were going to say you were fine, after all, you looked it! And so did Lesley Brydon, Pain Australia's CEO... how could she be in any pain?

January 12th, 2015 11:23 am

Permission granted and now it’s back to reality!

By |2024-03-18T15:48:06+11:00January 12th, 2015|Categories: Blog, Living|Tags: , |

Permission granted and now it's back to reality! Or is it possible I never really left my reality? As if anyone can leave chronic pain behind and really have time off! I'm going to post my brain's two conflicting versions: 1. Crap thinking out-of-the-way first version..

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