Permission granted and now it's back to reality! Or is it possible I never really left my reality? As if anyone can leave chronic pain behind and really have time off! I'm going to post my brain's two conflicting versions: 1. Crap thinking out-of-the-way first version..
Or should I say, looking forward to 2015? Looking forward is more my tune but the changeover of another year, especially with chronic pain, calls me to reflect and to ponder my [...]
I must sound like a broken record by now, but once again, I am left bewildered by my chronic pain journey and the contrasting experiences that go from excruciating pain to exhilaration. Above all, I feel incredibly privileged at the opportunities presented to me and so happy to be able to help others by communicating my story. I could not have done this without Theo, my family and of course Peter Lamont and Jacinta Cashen.
Very chuffed to be selected as a semi finalist regardless of the outcome. The portrait was flown up to Sydney for a second round of judging. She didn't make the final cut of 30 finalists but I feel so content that Ms Soula is going to great lengths to create awareness for invisible pain.
Last week, I attended my last acupuncture appointment and for the first time in over seven years, am therapist free. Hang on, I have to just repeat that: I am therapist free Did I ever think this day would come? Of course I did and I believe that's why I am here. I have had my moments, but what I didn't realise through all that heat and whilst pacing like a snail, was that each flare up and pain episode was actually not an indication that pain was here to stay, but rather that it was actually beginning to leave. Although just a difference of minutes initially, eventually I felt the flare ups spreading further apart. And with recognising that change and NOT increasing my capacity past a snail's shell weight, I began to make progress.
Collage has been a little more therapeutic for me than my usual art forms. I think it must have been finding a technique that I could manage and one that didn't add to the fatigue and pain. Cutting small pieces of paper and glueing, drawing, attaching was just so light and easy. The painting of small pieces of paper and the careful ripping and tearing was like rocking. So gentle, so calming and at the same time feeling like I was handling my pain, expressing it and getting it out of my body and onto the art piece.
It's astounding the levels the WorkSafe Agent will stoop too (which are the levels WorkSafe obviously set) in order to avoid their responsibility with my WorkCover claim. I'm going to keep up with this documenting as I want to encourage other injured workers to fight these pathetic insurer circus acts. It's unacceptable, not to mention, not what my WorkCover premium was paid for. Where's my 'quality income protection', where is my return to work help, and where is my income and medical financial help?
(http://americannewsreport.com/nationalpainreport/my-story-a-pain-in-the-coccyx-8823596.html) The National Pain Report, my story. April 14th, 2014 by Soula Mantalvanos I begged my neurosurgeon to do anything, even to chop my coccyx off. But after getting opinions from other surgeons, he suggested not to go the invasive path as we had the option for an implant called a peripheral stimulator, a treatment that was reversible. It made more sense.
(Sing with me, to the tune of 'The 12 Days of Christmas'': 16 points of stimulation, multiple case managers, too many Independent* Medical Examinations, 9 anaesthetics, Several investigations, wasted complaints to WorkSafe, Four conciliation applications, Three operations, Two Medical Panel Opinions, One Impairment Assessment, and, no Partridge in a Pear Tree to be found...
Now here's something I didn't see coming, my pain journey being transformed into an educational documentary about Pudendal Neuralgia (PN). And I have to warn you, there won't be much smiling and [...]
