This post has been updated, please visit Pudendal Neuralgia treaters around the world or continue to read this and all the lovely comments from the amazing Pudendal Neuralgia family.
I can’t adequately define the moment I was diagnosed, it’s just too difficult to explain the 4.5 year scattered hunt that ended with a few seconds and just two words!
Empathy and understanding however, are two words that do explain what I felt when seeking approval to use the research and names of the Pudendal Neuralgia Masters (as I like to call these specialists). Honestly, if words, thoughts and care from complete strangers could heal me I would have been healed twice over by now. These Masters really touched my heart (unfortunately not my stubborn Pudendal Nerve, but all in good time!).
I wanted to share these comments, especially for anyone suffering with Pudendal Neuralgia as I feel its important that we all know who these incredible human beings are and that they are endlessly working towards our cure and international awareness every day. The other important thing is to know where they are.
(In response to my request for information I also included a sentence for busy practitioners: You can reply with ‘yes’ to approve this if you are busy. This will explain the first reply below)
1. Docteur Jean-Jacques LABAT
Docteur Jean-Jacques LABAT
2. Thierry Vancaillie MD (Belgium), FRANZCOG, FFPMANZCA
Your website looks fabulous! All the material we use commonly is on our website, feel free to use it. If there is something more specific you need let me know.
Anne Florence is a great asset, I agree and a wonderful human being.
Keep up the good work, well done
Thierry Vancaillie MD (Belgium), FRANZCOG, FFPMANZCA
Gynaecologist and Pain Medicine Specialist
Conjoint Professor, UNSW
Director, Women’s Health and Research Institute of Australia
3. Stanley Antolak, Jr., MD
I am sorry about your problem. It can be successfully treated…
I spoke with Prof. Vancaillie in France a couple of years ago…he seems studious about this problem and very compassionate.
Good luck, do not despair. Hug your therapist from me. She is important to you and your brothers and sisters with chronic pelvic pain.
Stanley Antolak, Jr., MD
4. Fetske Hogen Esch
I am so sorry that I forgot to answer you. Have been busy. Of course I allow you to link. It is important that people know there can be something done about their pain problems.
Good luck and feel free to contact me if you have questions.
Warm regards Fetske
Fetske Hogen Esch
5. Jacques Beco M.D
Dear Mrs Mantalvanos,
I understand. It is the same problem everywhere in the world.
I have put all the information I have on www.pudendal.com . You can insert some of my presentation on your website without problem (but refer of course)
No problem. You can use my work on your website.
Keep me informed when it will be ready and I will insert your link on www.pudendal.com for Australian patients.
Jacques Beco M.D.
6. Peter Courtney
499 Springvale Road, Glen Waverley, VIC, 3150
t (03) 9566 2733
Melbourne Pain Group
6. Professor Teddy
(Responsible for my peripheral stimulation device)
1300 773 247
Neurosurgeon, The Royal Melbourne Hospital, Western Hospital, and Northern Hospital
And of course, thank you to my local Masters who offer a mixture of relief and treatment!
Michael Anthony Quinn
9. Lorimer Moseley
thanks for asking soula –
i am happy for that i think – heidi is copied in – she might have a better idea of what that actually means…
Professor of Clinical Neurosciences and Chair in Physiotherapy, School of Health Sciences, University of South Australia.
You’ve got a great looking site. Thanks for including BiM – we’d be delighted!
Digital Strategy, Research Assistant, Body in Mind.
10. Anne-Florence Plante
Good job, great work and energy, well done both of you.
theo you will be made redundant soon, you desserve still an award as a carer…
Soula please make a art gallery or an exhibition that is accessible from your website with your work on pain, your art, your soul … good luck
Pelvic Chronic Pain, The Women’s.
Wow, Soula, I get home from Adelaide to find the site’s gone live! Congratulations, what an achievement! It looks fantastic, what a great compliment to your persistance, resourcefulness and fabulously curiously mind. I am about to proliferate it throughout my therapist networks – there are many that know of its existence and are waiting impatiently for it!
Remedial Massage, Gertrude St Yoga Centre
I just want to thank you for sending your wonderful news and designer website about pudendal pain and effects.
You have done a sterling journey and I can t even begin to imagine what you have endured and learnt from it all.
Have a lovely day and ‘WELL DONE” HERE’S TO A BETTER QUALITY LIFE FOR YOU!
Director, Pond Massage Water Wellness P/L
Had a look at your website and blog and pleased to know that you are taking the bull by the horns to help raise awareness and education of PN in Australia.
We established HOPE website in 2009 and now have many health care professionals supporting us with providing up to date, accurate information. MRI and flouroscopy imaging has improved so much in recent years. Unfortunately we are faced with a medical world still learning of our problem. Thank you for helping to raise awareness in Australia.
This type of injury can heal by itself in time Soula, so don’t ever give up hope that one day you’ll be pain free again. it is possible.
HOPE (Health Organisation for Pudendal Education) in Australia & New Zealand.
Dr Coralie Wales
Thanks for your message. Nice website, well done! I have read through your website, its got some good content. I am happy to put a link on the CPA website as well.
Dr Coralie Wales
Chronic Pain Australia
To the masters not online
Dr Eric Bautrant who made no comment but added me instantly to his mailing list so I can share his information, and other specialists my Pudendal family members have recommended from personal accounts.
8. Dr. Eric Bautrant
25, rue Victor Hugo 13100 Aix en Provence, France
t: 04 42 37 38 07
(Following information from Pudendalhope.org)
Professor Roger Robert leads a team of physicians from Nantes, France that diagnose and treat Pudendal neuralgia. Prof. Robert developed the trans-gluteal technique for surgical release of the nerve.
7. Prof Roger Robert
Neurosurgeon – Multidisciplinary Meeting
Clinique De Neurotraumatologie
Hotel Dieu, 1, Place Alexis Ricordeau, 44093 Nantes
More information on international specialists can be found at Pudendalhope.org