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The way relief started

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During 2010 I visited a pain specialist who was treating me with acupuncture and this specialist suggested I have an epidural injection in my lower spine to see if I might have pain relief and if so continue with one or two more consecutively.

I went to visit my Orthopedic Surgeon, Mr Roy Carey for an update (and dreamt he was going to say, ‘we found the cure for chronic back pain’ which he didn’t of course), but also to discuss the injection idea and he recommended to aim the injection more specifically into the coccyx.

I had that done and my pain relief was only from day two to about day four. But this was enough for Mr Carey to understand my pain issue was not mechanical but rather neuropathic. He referred me to Professor Peter Teddy (professorial fellow in Neurosurgery in the Department of Surgery at Melbourne University) at Precision Neurosurgery.

Prof Teddy listened (and heard!), asked for one more scan, then took my scans, and presented my case to an international conference of surgeons, and also back home to the Department of Surgery at Melbourne University. The suggestion was, rather than take drastic action (which I was willing to take at that point I was so desperate) and remove my coccyx, that we first try a Peripheral Nerve Stimulation device?

In my case, the procedure was much less complicated as I didn’t need the leads to go through the spinal canal but rather along the right side of my sacrum and coccyx. There is a trial period in which the unit sits outside and is ‘plugged in’ via the leads that, yes, are sticking half out/half in your body. Look I know that might sound gruesome to some but please… we’re talking about chronic pain here… it was nothing. A cinch… it worked, it’s in now and giving me great pain relief.

But that’s my experience. This is an operation, infections are a serious consideration here (so is the anesthetic effect, weeeeee!).

This x-ray is me now!!

Continue Reading: The way Relief continued…

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  • Lorna

    I have just had a hysterectomy and anterior and posterior repairs. I have been left with a terribly sharp pain in my buttocks, legs and back which the surgeon says is the Pudendal Nerve and it should settle withinin 3 – 4 weeks. you can’t sit or lie down the only relief is heat or slow walking. I do hope he is right and that the pain will subside soon. I am scared that this may be permanent !

  • TobeyGal

    Wow. Sounds like you had great doctors. That’s fabulous.

    • Soula Mantalvanos

      Took four years but we got there in the end. It certainly would be great to have a correct diagnosis as early as possible. Which is why I created this site. Hoping I can save others 4.5 years of lost time. I have no doubt I would have been in a much better place had I been diagnosed within 3 months.

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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