Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I’ll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!):
- Write in my journal, release frustration there
- I found relaxation techniques (from foot rubs to breathing, showers, smelling flowers, etc)
- I learned and practice Alexander technique
- I have regular massages with the same practitioner (cupping included)
- I accept help
- I lean/rest everywhere, even on traffic lights, I use my elbows on the table (who says its rude?)
- I have a walking stick for a more difficult outing (like travel or gallery visits)
- I sleep in, rest, nap or all at different intervals throughout the day
- I have insoles gallore! I insert a heel gel under my shoe’s sole and then insert a full length Crock sole ontop of my shoe’s sole
- Limit transportation as much as possible
- I’ve made home super comfy and as happy as possible, things within easy reach and as light weight as possible (plastic fantastic!)
- I’m totally setup on the internet so I can communicate to all my friends and family and stay in the loop with my great loves, design and art
- I accepted more help
- I shop online
- I bought a smart phone (allows me to travel much lighter, play mind strengthening games, use resourceful apps, stay creative with photography, social networking, keeps you in touch with the world etc etc),
- Sadly, packed away the g-strings for now and replaced them with nice full and firm underwear. Nothing synthetic or too tight
- Keep the ice pack and heat pack handy at all times
- I’m strictly keeping my weight down (the cruelest of all, as if being in pain isn’t bad enough I have to diet!!!!!!!!!!!!!!!)
- Do my own research at all times, keep up with my condition’s progress
- Listen to my body
- I write, read, draw, learn, whatever, I find some short, light, flexible duties
- I take part in my community as much as I can (gallery openings, have a coffee with a friend, simply bump into neighbours while walking, post a letter, even though it hurts I still go out for dinner, a drink, anything I can manage)
- I accept even more help
- When I feel like I can handle the pain, I move, do a little dance, whatever I just do it!
- I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do
- I learned and practice the word pace
- I’m more selfish
- I say “I can’t” and recently I’ve even stopped apologising because “I can’t”!
- I let go of obligation (actually I need to work on that one)
- Keep any visit short, close, soft (not too many parties unless you can walk away)
- I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash
- I have a daybed and made a ‘dayspace’ no where near a television or my bedroom
- I have a dog, he’s one of my biggest aids
Sue I often feel one pain settle and another surface. Some days are just neverending pain. I hope you’re better today and the worst has passed.
Today have felt so tired and had to have a daytime nap. I listened to my pain control hypnotherapy tape twice and then woke with aching hips and legs. Have looked at everything I have eaten the day before and cannot see an obvious culprit. I suppose I have to accept that the fatigue is all connected to have a pudendal nerve problem.