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Pain Train featured in the AMA Victoria’s VICDOC magazine
Pain management has come to me in various forms. It’s a pretty special feeling that my 11 years of experience with chronic pain may be useful for learning and inspiring change in the way pain is managed and the way patients and professionals communicate. Pain Train is essentially a new language for the health sector. It’s going to take time for everyone to learn it and feel confident to use it. It will take some forward thinkers. For now, it appears people with pain are (understandably) too tired and perhaps needing to hear their [...]
Pain Revolution 2018
(Cut to the chase, I want to support the Pain Revolution 2018. Image: Lorimer and Soula at the Pelvic Pain Foundation of Australia Melbourne launch) I’ve got a soft spot for Professor Lorimer Moseley. In Feb 2011 I had just had the peripheral stimulation implant op and was slowly emerging from my darkest days. Alone at home while Theo started a new full time job and staring at our shut down graphic design business I was still unable to do very much at all but I listened to the radio and that was where I first heard Lorimer speaking. [...]
Marking the beginning of another year…
Thank you for your patience while I updated my website. I feel refreshed now…! I’m really happy to not only have updated my website but to be reporting on my positive progress. I’m doing that by ‘Marking the beginning of another year’ and not the end of one. We go forward – right? I’m getting better and better at this chronic pain management business and my pain levels are decreasing. I’m upping activity ↑ and downing the pain levels ↓ – delayed pain response included! I NEVER thought the delayed pain, ridiculous responses would ease. So, sacrifice after sacrifice [...]
When It Pays to be Dumb
The effort my insurer makes to appear stupid and ignorant in their daily work, and the effort they make to voluntarily communicate their ignorance, today, for some reason (let's call it this fab new medication) made me want to laugh.
Treatment Reimbursement Fight Continues
I'm still fighting for reimbursement of my peripheral and sacral stimulation implants. Insurer X (let's call them that but really what I call them is irrelevant - they're all the same!) are investigating valid reasons to support my treatments (or rather seeking reasons NOT to). Having already rejected liability for my peripheral stim implant (2011), Insurer X, with all their grace are asking for further information in regard to my sacral stim (2015). One of the questions forwarded to my specialist reiterated to me once again how backward this system is. The insurer is searching for 'negative' factors?! Any [...]
Married 20 years today
Theo and I celebrate our 20 year anniversary today. 10 of those years we’ve had to unwillingly share with chronic pain, 5 of which, I can totally admit I was not really present. Celebrations are so hard because you can never celebrate the way you used to. You can’t celebrate the way you want to either. Even if 10 years have gone by, I know for sure that Theo and I would have had suitcases ready now and we’d be planning a great trip overseas to mark our anniversary as well as our birthdays which all fall in November. [...]