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I made a gallery
True! Theo and I made a huge life move as many of you have read. Our transition began over a year ago when we escaped to Tasmania to figure out how to manage life with chronic pain. It was the best thing we did even though terrifying at the time. In just over a year, we have spent four months in Tasmania, returned to our dear Collingwood, sold our warehouse sanctuary, removed ourselves from our main business (as I couldn’t do the previous design work), planned a new lifestyle, and began a new venture [...]
My pain management is turning into a thesis!
It’s taken almost 9 years but I’ve realised that chronic pain requires alot of study – dare I say never-ending study? I believe my research for pain relief for chronic pain may be paving the way for a thesis! I’ve had a good chat and stare with myself in the mirror, allowed the gut feeling to sink (for just a few seconds), called on gratitude, and here I present to you (with a backside that will soon be comparable in value to Jlo’s) another section of Soula’s Pain Management thesis. Let’s call it Chapter 4 (approx.) Patient: Soula (me) [...]
This injured worker is about to burst
(Image from my book, Art & Chronic pain – A Self Portrait) I’m going to erupt! I feel I’ve been left without any avenue to vent the poor treatment I’ve experienced as an injured worker. I can’t make it any simpler : I had a work accident and after declaring I had a p/t work capacity, I’m now left with $0. That’s $0. $0 financial help for any future treatment (currently undergoing thousands worth) $0 wage top up $0 superannuation 0% return to work training or assistance 0% guidance, and 0° (except for this blog) to reasonably seek the [...]
How can you know? There might be better treatment out there!
I know that living with pain for over eight years reduces confidence and belief. It even (warning, I'm going to use the C word), discourages hope for a cure. But how could I have assumed I found my best self for four years (nearly five actually, gulp!)?
Back on the treatment trail
So someone got talking to someone on a plane (you know how that story goes, your eyes begin to glaze over because you're in pain thinking 'if this friend tells me I need to meet someone and sustain a new friendship, I'm going to punch him' - but in the end, it works out that you wished you had sat next to that someone on the plane, and you meet that person and you wished you had met them a very long time ago (like eight years ago for me).
Peripheral Stim messing with my bone density score
Thinning bones at the age of 43. That's not good, in fact I landed, once again, in that unique and very small group of patients with a rare condition...