It only takes $10 to say thank you for all these free resources
Have I helped you in any way? That is my complete intention because raving on about living with chronic illness isn’t fun. So your smallest act of gratitude would mean the world to me (and to the ongoing management of this website).
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How do I do it?
Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I'll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!): •I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do •I learned and practice the word pace •I'm more selfish •I say "I can't" and recently I've even stopped apologising because "I can't"! •I let go of obligation (actually I need to work on that one) •Keep any visit short, close, soft (not too many parties unless you can walk away) •I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash •I have a daybed and made a 'dayspace' no where near a television or my bedroom •I have a dog, he's one of my biggest aids
My family, Theo, Origin of Image and Zephyr
There isn't one single reason I can give for 'coping', I think a few things play a role. The biggest of all, I believe is my own brain's chemistry and built in ability, something I don't believe I have control over and was born with (and how greatful I am for this ultimate survival gift!), but coming in second, or even on par, is my husbandly support, Theo. I don't know what I would have done if Theo hadn't understood my pain and my eratic injury and hadn't supported me 200%. Seriously there were days I thought I was crazy...
Glossary
avulsion The forcible tearing away of a body part by trauma or surgery chronic A chronic condition is continuous or persistent over an extended period of time. A chronic condition is one that is long-standing, not easily or quickly resolved (tipna.org) coccygeus muscle One of two muscles in the pelvic diaphragm. A triangular sheet of muscle and tendinous fibers. It acts to draw the coccyx ventrally, helping to support the pelvic floor (see also Levator Ani) coccyx A small triangular bone at the end of the spinal column entrapment A disorder of a peripheral nerve characterized by pain and/or [...]
Resources I have found
File downloads and links Physiotherapy management of pelvic pain and sexual dysfunction: Clinical Application. Pdf 3.2mb Anal Pain Caused by Entrapment of Nervus Pudendu, Ahmed Shafik. Pdf 150kb Transperineal Pudendal Nerve Decompression, Jacques Beco M.D. Pdf 180kb How can we win the war against pudendal neuropathy? Jacques Beco M.D. Pdf 1mb Complex Pelvic Pain Syndromes, Charles W. Butrick, M,D. Pdf. 1.5mb Pudendal neuralgia, a severe pain syndrome, Benson JT, Griffis K. PubMed.gov link to extract Chronic Pelvic Pain, Dharmesh Kapoor. Medscape link Management of Chronic Pelvic Pain, James E. Carter. Obgyn.net link New Method for the Treatment of Pudendal [...]
‘Chronic Pain Disorder’ medical panel opinion?
What does it mean? From what I've gathered it basically means big general pain bucket and, its time to update the Wrongs Act 1958. And I'm stating very obvious information here because our Government has missed a very small detail... its 2012!!! ...Hello, anyone out there? If you are, it's time to update the Wrongs Act of 1958. Injured workers have injuries that can be addressed more appropriately, giving them a greater chance of getting back to work and lessening instances of permanent damage if the practitioners in the system can identify and use current information. (Or are you waiting for the 50 year anniversary?!!!)
Chronic Pelvic Pain Clinic at the Women’s
The clinic offers an alternative approach for women who have tried other treatment options but still have a high level of pain. The staff in the clinic come from a range of health professions. Together we will work with you to explore the range of possible causes for your pain and to offer ways to treat or to help you manage your pain. There is good evidence to suggest that this approach to chronic pain is beneficial. Our aim is to work with you to increase your quality of life.