I’m not going to say ‘welcome’ because there’s nothing welcoming about having to search for chronic pain relief. I do hope however that my website will be a great resource and guide for anyone who is dealing with chronic pelvic pain, as I have since March 2007.

This website is an account of MY personal experience of pelvic chronic pain. All articles are true and aim to document my ordeal since March 1, 2007, after a work-related injury. My intention is to help create an Australian resource for sufferers of Pudendal Neuralgia by explaining my treatment and therapy, hopefully eliminating years of pain, possibly permanent damage while giving useful tips to help increase capacity. Understanding and empathy is rare for this issue, research has a long way to go, in fact diagnosing it took 4.5 years for me. I will also talk about my coping strategies and my frustrating experience with the Workcover system.

If you choose to browse through pudendalnerve.com.au, you agree to the following disclaimer.

The information found at this website is not a substitute for professional medical advice, diagnosis, or treatment. It is not intended as advice for any particular patient/person. I do not endorse any specific product, service or treatment.

The information is designed to support, not replace, the relationship that exists between a patient/site visitor and their treating health professional.

To maintain your own privacy, please include only your first name or an alias when entering comments. You agree that the internet is not 100% secure and a breach is theoretically possible when you post something to this website or blog.

Who we are

Our website address is: https://pudendalnerve.com.au.

What personal data we collect and why we collect it

Comments

When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

An anonymised string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.

Cookies

If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

If you visit our login page, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

Analytics

Analytics are collected by google and JetPack WordPress plugin.

Who we share your data with

If you request a password reset, your IP address will be included in the reset email.

How long we retain your data

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognise and approve any follow-up comments automatically instead of holding them in a moderation queue.

For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

What rights you have over your data

If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

Visitor comments may be checked through an automated spam detection service.

Contact information

Soula Mantalvanos soula@pudendalnerve.com.au PO Box 320 Queenscliff Victoria 3225

Additional information

How we protect your data

We hold personal information in our own secure databases as well as that maintained by our third party contractors.

We will at all times comply with the standards, procedures and requirements of Australian data protection laws to ensure that the personal information you give us is kept appropriately secure and processed fairly and lawfully.

What third parties we receive data from

Source: MailPoet

MailPoet newsletter & emails

If you have subscribed to our newsletter or if you are a member of our website (you can log in) or if you have purchased on our website, there is a good chance you will receive emails from us.

We will only send you emails which you have signed up to receive, or which pertain to the services we provided to you.

To send you emails, we use the name and email address you provide us. Our site also logs the IP address you used when you signed up for the service to prevent abuse of the system.

This website can send emails through the MailPoet sending service. This service allows us to track opens and clicks on our emails. We use this information to improve the content of our newsletters.

No identifiable information is otherwise tracked outside this website except for the email address.

Source: Akismet

We collect information about visitors who comment on Sites that use our Akismet anti-spam service. The information we collect depends on how the User sets up Akismet for the Site, but typically includes the commenter’s IP address, user agent, referrer, and Site URL (along with other information directly provided by the commenter such as their name, username, email address, and the comment itself).