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Next stop: Traditional Chinese Medicine with Raffaele Vavala
Although I’ve tried acupuncture many times before, I’ve never felt as much of a response as I am feeling now after my four sessions with Raffaele Vavala. It’s possible my body wasn’t ready for it, being in ‘the thick of it’ until about a year ago my onion was just too big! But I also believe some practitioners do have more of a gift than others and Raffaele is gifted! The consultation methods make great sense to me. My scans have been considered, but my tongue, palms and pulses on both wrists do all the pain and story telling. [...]
Peeling onion layers… “No.6!?”
Another year gone by since the pop! Now I know what practitioners mean about peeling onion layers. My onion layers have gone something like this: Removal of pelvic thickened ligament Peripheral stimulation device implant Diagnosis Nerve blocks Medication … Could it be my Traditional Chinese Medicine? […]
Subject: Fair Assessment for Compensation?
For those subscribed to this Fair Assessment For Compensation post, I have had a reply and it is posted here! AN OPEN LETTER TO WORKSAFE AUSTRALIA (CC’d The Hon Gordon Rich-Philips) SUBJECT: FAIR ASSESSMENT FOR COMPENSATION? My name is Soula Mantalvanos and I am an injured Australian worker ever since an unfortunate incident in March 2006 where the fitball I was sitting on burst and I fell on to concrete. I was diagnosed after 4.5 years, with a painful condition that is often misunderstood; it is Pudendal Neuralgia (specifically Pelvic Chronic Pain). Obviously you will be able to imagine the difficulties I have had in the WorkCover system [...]
(Hardly) Happy 1st birthday pudendalnerve.com.au
Well it's hardly a birthday celebration! But certainly a time to reflect and assess myself and the achievements of PudendalNerve.com.au. The total visits in 12 months total an astounding 21,500 and the search terms are a clear indication that still, so little is understood of Pudendal Neuralgia worldwide. The first note must be of thanks and of course, has to go to my husband Theo. Without Theo's daily help this site simply wouldn't be up and running.... neither would I! Second note worthy thank you, and certainly something that can be celebrated, has to be the beautiful connections I've made in the past year. I've met the most inspiring, energising, kind, compassionate people, whether practitioners, therapists, chronic pain sufferers, or people attached to the pain system, you have been my encouragement and empathy. Your pain and/or knowledge inspire me to continue and get to the bottom of this dreaded pain issue (in the hope of resolving it not only for me but for all of us!), and/or try to voice my improvements for an ignorant WorkCover system. As far as my personal 1st year status goes, I definitely have 'progress' to celebrate; I'm running on Nerve block no. 3, refreshing my pelvis as required with a newly installed bidet, taking minimal amounts of Endep, in much less pain but still much limited with capacity and in need of daily help. Although I still need regular massage, I'm able to work a little from an accommodating home setup, thinking a lot more, delegating-delegating-delegating and finally, but not least, have taken a plunge into the wonderful world of Chinese Medicine which I believe may finally be able to reach my pain. Stay tuned for another update on that soon. (image) Nerve Block Cake & Candle To sum up, here are some stats that may be of interest to my subscribers and visitors (and my very loyal spies!).
ABC Radio National thank you thank you thank you
Finally some accurate coverage and attention. WorkSafe, I hope you were listening, ignore Chronic Pelvic Pain no more! Honestly, I cried listening to this on Wednesday. Nothing like empathy and understanding after years of pain and hunting for diagnosis and proper treatment. So for anyone who's (understandably) thought 'is so-and-so really in pain? I just don't understand', please listen to the following 38 minutes. The world of pelvic pain specialists have jumped on this wonderful exposure, Wednesday was a day that will be marked in medical history. It's given all sufferers a voice and most importantly an audience. I [...]
Talk to me!
I don't encourage contact as it's difficult for me to manage the communication but If you feel you're going to burst if you don't tell me something, then please feel free to leave a comment anywhere on the website or send me a message via this form: Publicity is welcome if it's genuine and about raising awareness for this horrid pelvic pain issue. [contact-form][contact-field label='Name' type='name' required='1'/][contact-field label='Email' type='email' required='1'/][contact-field label='Comment' type='textarea' required='1'/][/contact-form]