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Aussies Turn To Online Advice To Try And Get Off Their Antidepressant Medication
I really can’t believe this story. Stories like this one leave me feeling healthcare is still so miserably failing people. Our voices are not being heard. I began this website in 2011 because the lived experience of Pudendal Neuralgia and the management and treatment of chronic pain for individuals by healthcare professionals was grim. Feeling my advocacy efforts weren’t necessary, thinking there were enough voices in social media to ensure that individuals and the industry were being educated, the last thing I expected was a story like this. This recently featured story on The [...]
The 17th Anniversary Post
In 2013, when I began making progress with pain management, I had the idea to make a marionette of myself. Theo and I had just travelled to Italy (masks and Pinocchios everywhere!), and returning on the plane I watched the film, Marilyn. It dawned on me how seriously invisible many illnesses are. As much as I would have loved to make the marionette myself, at the time, any self-portraits I was drawing or painting were horrifying. They were brutal, disturbing, and sad to the point where I had to ask Theo to wrap them up one day – I couldn't look at them anymore.
Consultations with Anne-Florence Plante Now Available
Get ready to listen, learn and return to a better quality of life. I 100% believe that had I met Anne-Florence in the first six months after my accident, I would not have endured chronic pain. And this is why I'm confident Anne-Florence will help you return to your whole, fabulous, painless self - or as closest as possible. What she did for me after meeting me at my worst was nothing short of a life-saving boost. And a realignment. She popped me on the path to recovery, and even more than that, she reached me on a personal level, aiding my return to life with ideas relevant to me. I'm thrilled about telehealth and global communication options because they mean she's always there for me! And now, Anne-Florence is there for you too!
Is Symptom Tracking Your Road Map to Better Days?
Soula Mantalvanos (me!) as a guest contributor on MoreGoodDays. If you're living with fibromyalgia, you'll know first-hand how the experience forces you into constant symptom tracking. What’s this niggle? Is this new? Does this relate to something I did? What’s going on? Sound familiar? It's an exhausting thought process that can keep you spiralling into confusion. Being too focused on symptoms (especially when you’re already living in a cloud of fatigue) can perpetuate ongoing fear and catastrophising. This can lead to a continuously reinforcing worry cycle in which focusing on the pain actually makes it worse. Imagine letting [...]
It’s National Pain Week And I’m Celebrating by Writing the End of this Story
Every year I think something amazing will happen during National Pain Week. But every year, nothing amazing ever does. We all wait for answers, but either the answers don't come, or they prove more tiresome. Worst of all, the answers are a direction to a lonely zone – the figure-it-out-yourself zone! So, figure it out myself; I will this year! I'm making National Pain Week AMAZING by writing the end of this story.
Let’s Be Brave Together
A few months ago and just appointed as CEO of Painaustralia, I was chatting to Giulia, who was making time to connect with people living with pain; our next step would be an interview for some media. Instead, I received an awful message. Giulia is a tough cookie, just watch our chat and feel that fire in her! And she'll be using that fire to put this awful experience to great use - raising funds for So Brave and Painaustralia as she shaves her hair on 31 July. I want us all to get behind her. It's an opportunity to maximise this incredible act of bravery and help two causes that cause such grief in life; Cancer and chronic pain. All funds raised will go to So Brave breast cancer charity and Painaustralia, the peak body representing those in chronic pain - we'll be helping a considerable group of people with one donation.