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Now let’s get this straight…

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Soula's pain demonstration

So, you think you can see pain hey? Or rather your understanding is, if you don’t see it then it’s not there? Please read on because people like you drive me a little batty…

Now I’m going to need to prepare the ignorant readers because they truly are in for a rude shock… so ignorants, grab yourself a chair or lean somewhere and make sure you have a glass of water on hand. For those in pain and who understand and know exactly what I’m about to say then prepare to feel the load lift and the great sense of relief. Enjoy the moment, feel the empathy coming your way and most importantly, get ready to hit that share button.

Ok so some of you have cheated and glanced further down and read my big announcement, my shock news… ignorants, I hope you were prepared and are still standing.

“Pain is invisible!!!” Continue Reading

HowToCopeWithPain.org

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I feel I’m exercising my brain when I read an article that sparks more thought and leads me on a hunt for more and more information and the process all results in gold! It might not necessarily be what I was looking for but a lovely surprise nevertheless (and some excellent resources).

I had one of these info-journeys last weekend. It began by reading Imagine: The Science of Creativity in The Saturday’s Age (Melbourne 7th April) by Jonah Lehrerare, and coming across this quote: Sleeping is the height of genius by Kierkegaard. It made me think about another possible cure for my issue (I know, very far-fetched but imagine if my brain could be programmed to make me live/dream all the activities my pudendal nerve won’t let me do by night?! Imagine?!). So I went to my favorite, most trusting online resource, no, not Google, Body In Mind Continue Reading

Flare up

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Flare Up Process

Talk about getting the life sucked out of me! And the long-awaited, grand finale, official last symptom of my flare up is waking up and feeling I’ve had a bulldozer go over me… a few times… at least! My muscles ache all over, I could almost fool myself and pretend I’ve run a marathon, but in reality I’ve been in the dark cave of pain for days, sleeping and resting… and sleeping and resting. Oh yes but getting up long enough to cancel any commitments, or in the final day, getting up and attempting a coffee outing, only to realise that nope, flare up wants a bit more of your life.

I have nothing nice to say about a flare up. It’s nothing but my injury’s hissy fit and a brutal check point that tells me I’m not my old self yet. But since I like to keep a positive outlook and focus on the good things, I will say that coming out of a flare up feels incredible. I feel I could fly, my brain gears up again: ‘Of course I’m going to beat this’, ‘yes, I’ll be me again one day’, ‘I’ll get back to work for sure’, ‘I’m going to start a painting tomorrow’, ‘I’m going to sit on a hard bench tomorrow’, ‘movies – bring ’em on!’ and, ‘darling, let me drive today’...

Five years on…

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Five years were needed to finish the garden and surrounding buildings of the Taj Mahal Read more…

A mother was given a 5 year prison sentence for sending her five year old son to a school district where she had no permanent residence. Read more…

Willow the cat went missing in Colorado during a house renovation. Five years later, miraculously, the feline was picked up stalking the pavement in Manhattan in New York City and is being reunited with his owners 1800 miles away. Read more…

It took five years for Facebook to make a dime. Read more… and it took five years to reach seven hundred million worldwide users. Read more…

Five years after the first ever tweet, the 572,000th twitter account was created and the 177 millionth tweet was sent. Read more…

It took five years to build the Christ Redeemer Statue that stands 125 feet tall atop the Corcovado Mountain high above Rio. Constructed in France by sculptor Paul Landowski, it was shipped to Brazil in pieces, and then carried up the mountain by train, where it was reassembled. Read more…

It took Emma Thompson five years to write Sense and Sensibility, for which she won an Oscar. Read more…

In 1980 Post-it® Notes were introduced nationwide. It took five years to perfect the specifications and design machines to manufacture the product. Read more…

It would take 5.4 years at Mach 1 (0.34 km/sec) to get to Mars from Earth Read more..

But my point, folks, is that it’s taken 5 years to find and shut my pudendal nerve up and greatly reduce my chronic pain.

Please spread this link www.pudendalnerve.com.au, pudendal neuralgia need not be a mammoth issue for anyone, and certainly a feat not worth enduring for any reward in the world.

Just a little paperwork!

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WorkCover paperworkQuite a pile hey? I’m impressed myself, it’s alot of documentation! In actual fact my husband has to pull these out when we need some ‘reference’ because they’re so heavy.  And there’s so much more correspondence that I’ve received via email too, haven’t printed that off! One day I’m going to make a great, big collage out of this pile (Eureka!). Thought about the bonfire but doesn’t work in this case. It’s something that needs to be seen to be believed. To be honest I look at it and admire my survival tactics.

Oh sorry, got carried away, you don’t know what this is? Oh come on, take a stab! A life time of bills? Bank statements over the last 20 years? What could possibly need five folders and cost a few trees? Why on earth would I have to document anything this much, what would terrify me, cause me to watch my back, leave me feeling I need to record to this extent, who can I distrust this much?

It’s my WorkCover related paperwork of course…  well most of it, since March 1, 2007. It roughly works out to one folder per year.

 

Funniest of all…

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…is that most employees and associates (practitioners included) I’ve met through the WorkCover system have a rude assuming attitude. They never treat me like I want my life back, that I want to be healthy, working and able again. I truly think WorkSafe agents are convinced this payroll is actually attractive (that’s my favorite!), that their practitioners (who agree to consult without having to advise patients at the end of a visit) are better for me than my own. They never stop to think that an injured worker hates to have to tell their friends and family they are relying on the system’s ‘support’, that I might be in pain all day every day, they never speak to me like I’m a human being. And, they keep insisting that there are many Australian workers that want to be ‘on the system‘, or as put especially for me, ‘how many Australian’s want to shut their businesses down and live off the Government’s money‘.

I wonder where this comes from, are the WorkSafe agent employees trained to think that anyone on their payroll is dodgy? It certainly might explain why no one is compassionate, no one is empathetic, no one seems to understand, no one can answer a question appropriately, no one can make things happen for you, no one is interested (staff are here today gone tomorrow), all you get is lies, lies, lies or no answer, irrelevant treatment and judgement.

Are there Australian workers out there really happy to be home and on the Government payroll? If so, how many, and can we have these stats (actually everyone ‘on the system’ must be assumed shonky, otherwise our doctor’s opinions would be valid).

My, not-so-funny point is, I’m appalled that the system treats me this way and my case can’t be addressed appropriately and relative to my endless efforts to restore my health and get back to work. Rather, it seems to aim to make it difficult so that I’m pushed to give up my entitlements, or sadly, and more damaging still, remain wrapped up in the endless battles for the support I’m entitled too.

Not so funny really…

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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