Looking for Something?
Posts Tagged for

coccyx

National Pain Report, My Story: A Pain in the Coccyx

Author:
Soula On National Pain Report

by Soula Mantalvanos

My pain began in 2007 when a fitness ball I was sitting on burst and I dropped onto a concrete floor. The pelvic pain that began then, I still have today: a gnawing, itching, toothache like, burning pain that causes weakness to my legs and leaves me unable to lift more than a couple of kilos or sit without constant pain.

Soula Mantalvanos

The pain worsens after any of this activity and seems to gather in a sensory flare throughout my lower spine when I go to bed. It’s unbearable.

I had many treatments, including the removal of a pelvic recto/vaginal septum. This restored my ability to at least shower barefoot and bury the hellish feeling of having my finger stuck in an electric socket whenever I hear a loud noise or am near vibrations.

But I only shed one layer of my great onion of pain. I had not been diagnosed yet and felt lost. Continue Reading

My ‘Fatty’ tail aint fat afterall!

Author:

Fatty TailClosure really is something. Feeling like a niggling concern is finally put to rest can be so satisfying, it brings me such calm.  Slowly, my pelvic chronic pain niggles are finding their place and providing me with the peace my body and mind needs so I can let go, move on and most of all feel my injury is clearly understood.

I had another session with the wonderful Raffaele who continues to treat me fortnightly. I was ready to call the next nerve block last week but after yesterday I’m hopeful again and thinking I was in some kind of a flare. I can’t expect (but I will!) that with my effective management flare ups will cease to happen. As I test my capacity and lift my full litres of milk occasionally, walk the dog and go out more often, I’ve got to expect at some point the body is going to say, ‘hang on love, you’re lifting too much milk!’ Continue Reading

Take a seat… if you can!

Author:
Soula's Seat Pile

With Pudendal Neuralgia, or any other pelvic chronic pain issue, it can be impossible to sit pain free (let alone get away without a flare up).

Of course, I’m no pro when it comes to seating, but I’ve learned a lot from my own experience and from listening to the ‘ouch’ in my pelvis. The seating I needed, was most often hand-made! (Have a look at the one my gorgeous father in law made, it’s the stool with adjustable foot rest!)

Although I’ve worn out, thrown out, tried and tested so many more seating aids, I’m showing the ones that have lasted or worked for a while. These are the ones I often resort to when things are getting heated again. Continue Reading

The way relief started

Author:

During 2010 I visited a pain specialist who was treating me with acupuncture and this specialist suggested I have an epidural injection in my lower spine to see if I might have pain relief and if so continue with one or two more consecutively.

I went to visit my Orthopedic Surgeon, Mr Roy Carey for an update (and dreamt he was going to say, ‘we found the cure for chronic back pain’ which he didn’t of course), but also to discuss the injection idea and he recommended to aim the injection more specifically into the coccyx.

I had that done and my pain relief was only from day two to about day four. But this was enough for Mr Carey to understand my pain issue was not mechanical but rather neuropathic. He referred me to Professor Peter Teddy (professorial fellow in Neurosurgery in the Department of Surgery at Melbourne University) at Precision Neurosurgery.

Prof Teddy listened (and heard!), asked for one more scan, then took my scans, and presented my case to an international conference of surgeons, and also back home to the Department of Surgery at Melbourne University. The suggestion was, rather than take drastic action (which I was willing to take at that point I was so desperate) and remove my coccyx, that we first try a Peripheral Nerve Stimulation device?

In my case, the procedure was much less complicated as I didn’t need the leads to go through the spinal canal but rather along the right side of my sacrum and coccyx. There is a trial period in which the unit sits outside and is ‘plugged in’ via the leads that, yes, are sticking half out/half in your body. Look I know that might sound gruesome to some but please… we’re talking about chronic pain here… it was nothing. A cinch… it worked, it’s in now and giving me great pain relief.

But that’s my experience. This is an operation, infections are a serious consideration here (so is the anesthetic effect, weeeeee!).

This x-ray is me now!!

Continue Reading: The way Relief continued…

Related Posts
My pre pain life…
My family, Theo, Origin of Image & Zephyr…
The big bang injury…
Diagnosis: Physiotherapy at The Women’s…
Building Blocks…
Next stop: Traditional Chinese Medicine…
Soula’s PN Weather Update…
My practitioners

Enter your address to receive posts via email

Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

Pain Train my online health record

Imagine your specialist knew this much before your first appointment…

Pain Train my online health record

Save

Save

Save

Save

Order my book $31 (inc. postage)

Archives