I’ve met some exceptional people online who have helped educate me about chronic pain and helped with my pain management. I don’t hesitate to write and connect with people but only if I have a question that I haven’t been [...]
I know the science is tricky to understand but please listen to this interview. Not only is it important for your brain and as a patient/consumer, but there is a critical suggestion in this podcast for you and what you [...]
The effort my insurer makes to appear stupid and ignorant in their daily work, and the effort they make to voluntarily communicate their ignorance, today, for some reason (let's call it this fab new medication) made me want to laugh.
Please, participate in this survey. Your personal experience makes a huge difference to research. This study is being conducted by Dr Vince Polito at Macquarie University and Professor Lorimer Moseley at the University of South Australia. If you have any [...]
I'm still fighting for reimbursement of my peripheral and sacral stimulation implants. Insurer X (let's call them that but really what I call them is irrelevant - they're all the same!) are investigating valid reasons to support my treatments (or [...]
What great hope this pain management team provide. And I can’t help but think, well, ‘der’! I’m not being rude, but if professionals were able to understand the cultural background of the patient, and talk with them, not to them, [...]
Theo and I celebrate our 20 year anniversary today. 10 of those years we’ve had to unwillingly share with chronic pain, 5 of which, I can totally admit I was not really present. Celebrations are so hard because you can [...]
Unfortunately, it is all too common for the professional not to listen to the patient and not to believe in their pain. The focus on the ‘relief of suffering’ has almost got lost in modern medicine’s search for diagnosis and cure. It is hard enough to be coping with pain, but terrifying not to be believed when one goes for help. It should not take months of suffering and inadequate (or no) pain relief before a patient finally gets to a pain clinic.
The arts can be difficult to navigate at the best of times, but what if your particular challenges are invisible? Here's how the sector can pay attention, remove the stigma and better support individuals. One of the arts industry's most [...]
WARNING: This post contains serious attitude as a result of 10 years of personal experience with chronic pain. The post also contains my personal no nonsense view of living with a chronic illness and (much required) rotten sense of humour, [...]