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CODA 2022: My Lived Experience and I Will Be There

2022-03-04T13:40:36+11:00March 4th, 2022|Blog, Learn, Professional Resources|

I'm thrilled to be invited to another educational event IN REAL LIFE I might add.  I really enjoy collaborating with Dr Paul Grinzi as a lot of his educational workshops have a great focus on communication. If people and their health teams can't connect then care isn't going to happen. So how do you reach, connect and help people who live with chronic pain? Come along and learn! PRIMARY AND ACUTE CARE Chronic persistent pain is a common clinical issue, and yet most of us have received very little training in how to best manage patients experiencing this. Not only do we have to manage the clinical and psychosocial issues presented by the patient, we have to recognise and manage our own biases as clinicians. The format for the workshop utilises patient experiences, clinical cases and new frameworks to help further our understanding of persistent pain and how to assist our patients. There is a specific focus on management within the community, but also opportunities to explore the challenges within the emergency and inpatient hospital interfaces. By the end of this half-day, you’ll have optimised your approach, and may find this topic a little less painful.

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

2022-06-09T16:36:29+10:00December 3rd, 2021|Advocacy, Blog, Events, My Health Story|

It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who were keen to learn about chronic pain. I've [...]

Presenting at the Murray City Country Coast GP Training Event

2022-06-09T16:36:30+10:00November 26th, 2021|Advocacy, Events, Learn, Professional Resources|

There are no formal qualifications for someone living with chronic pain but patients are considered 'patient experts' and our lived experience is very much valued. I've been invited to several seminars and training sessions relating to chronic pain over the course of my 14-year experience. It's of great significance for me to be able to use the lived experience – no other value for it really!

PainTrainMHS: Patient-Controlled InformationSharing Instrument

2022-06-09T16:36:30+10:00July 29th, 2021|Help, My Health Story, Professional|

When viewing my enormous health timeline (pictured), I feel like I've put the information and experience somewhere – it makes it authentic and validates it. Few people validate our experience of living with chronic pain. But this is a way I can validate it and value it. I want others to validate and respect it too. PainTrainMHS helps me do that when I present the information. Showing this to various practitioners and hearing their responses means a great deal to me. It also means a great deal that they grasp an in-depth understanding of my experience. No GP referral letter will ever include this much detail. I always find important information about me has been left out of the letter. All these feelings and activities are part of my pain management strategy – it's not all just about treatment, it's also so much about what I manage day-to-day, and there is so much detail in that day-to-day management. What I also see looking at my timeline is how my appointments have gone from red (bad) to blank (neither here nor there) to green (good). My experience is shown precisely and all it took was a glance. Have a look at how lost I was in the first few years... it was awful!!!!

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