/, Manage, Pain Train/My Health Record vs PainTrain My Health Summary

My Health Record vs PainTrain My Health Summary

Um, actually, they aren’t in competition. They are two very different online resources.

There’s no turning a blind eye or choosing to stay away from this technology change as it is affecting you right now and there is a decision you need to make within three months about your autogenerated account on My Health Record.

Are you staying in or opting out?

I opted out.

And not because I think My Health Record is a poor concept – it’s a great idea!

Remember I’ve made a type of online health summarising resource myself because I realise how important it is to organise your health information and communicate more efficiently with your health team/s.

So my one single reason for opting out is that I don’t trust our government with my information.

You might think this statement from someone who has most of their life on the internet is strange. But what I share on the internet comes directly from me and I choose what I want to share as well. The communication I make is to advocate for people living with chronic pain and for Australian injured workers.

I lived through the scenario and experienced first hand how information can be abused by our government and the bodies they assign to do some of their dirty work (eg WorkSafe, WorkSafe agents and other insurers).

That’s where my personal doubt for the privacy of my information on My Health Record comes from.

It’s bad enough insurers have the backup of government legislation to instantly force people into a medico-legal battle, now My Health Record also provides easier access to personal medical files. I’ve had an insurer hire an investigator to film me on the street in order to gather ‘evidence’ that I was not as incapacitated as I claimed (and apparently walking was valid evidence for the Worksafe agent to stop my compensation and throw me in a medico-legal nightmare!).

Once trust has been abused in this way, the trauma stays forever (and actually it’s been loads more than once in my case within the workers compensation system).

This week when I heard I had a My Health Record, it actually made me feel a bit sick thinking an insurer may have access to my personal records. I’ve had a specialist note incorrect details in some reports (ie one specialist noting I was planning an extensive walking holiday!!).

And there’s no statement our government can make that will give me the confidence to believe they wouldn’t hand over the information. I’ve read the My Health Record privacy policy. Here’s where my bells went off:

There are limited other circumstances in which your information may be collected, used and disclosed under the My Health Records Act. These limited circumstances include the provision of indemnity cover for healthcare providers, disclosure to courts and tribunals, for the purposes of coroner’s investigations, and for law enforcement purposes.

Seeya My Health Record!

Back to the differences

Like most of our lives that are moving online, so too is health. And so it’s important to know what information and resources are out there.

The newspaper and television are no longer our main sources of information. We have to get online and in fact, the most important reason to get savvy is that we all need to be responsible for our chronic illness.

  • You need to learn lots of stuff
  • You need to keep up with the lots of stuff you learned!

Exhausting. So that’s why the resources you choose should save you time, save you money AND save you excess pain!

Below are a few of the differences between My Health Record and PainTrain – My Health Summary and I’m outlining these because I do need to point out that they are two different resources. Mainly one is government run and FREE and the other is patient made, driven and $29per year.

My Health Record:

  • Auto opt in, manual opt out
  • Is free
  • Contains shared health summaries, discharge summaries, prescription and dispense records, pathology reports and diagnostic imaging reports (that you should check)
  • Provides access to your medical information to health professionals (and other people of your choice like friends and family)
  • Is Government generated and managed
  • Provides national accessibility to your medical records
  • May provide your medical information in limited circumstances for the provision of indemnity cover for healthcare providers, disclosure to courts and tribunals, for the purposes of coroner’s investigations, and for law enforcement purposes
View My Health Record

PainTrain – My Health Summary:

  • Is opt in
  • Costs $29 per year for an unlimited amount of health summaries
  • Is patient made and driven
  • Is an independent commercial product
  • Is more specifically created for people living with pain
  • Aims at helping with communication between the person and their pain team/s
  • Aims to empower people living with chronic pain
  • Aims to save time, appointment time and save repeating the traumatic pain details
  • Is where a person can create a complete health summary/summaries
  • Only contains the information a user personally chooses to include
  • Gives the user total control over accessibility
  • Takes all precautionary measures possible to make the website safe and protect the data
  • Was founded by Soula who has experienced information abuse and therefore would NEVER share user data
View PainTrain
By |2018-07-22T14:06:28+11:00July 22nd, 2018|Help, Manage, Pain Train|5 Comments


  1. […] blogged at pudendalnerve.com.au by Soula […]

  2. Frances Jolly July 22, 2018 at 8:58 pm - Reply

    Ha, ha, I just opted out of the my health record and then continued on and did my husband and son (with their consent). As I progressed from each person there were mistakes. The computer said my one was not successful so I hit the back button and got another odd screen. So I went into the history and it let me submit it. Then when I did my sons it asked me if I was a robot but then the pictures never appeared where you have to tick the boxes. So I then submitted it without the security check. If they can’t even get this right how can I trust them with my health information???

    • Soula Mantalvanos July 23, 2018 at 10:42 am - Reply

      Yes people are having problems with the site. It doesn’t give you confidence.

  3. Frances Jolly July 22, 2018 at 8:27 pm - Reply

    So true Soula, I would not trust my health records with the government, not that I have anything to hide. Insurance companies are so vile they would find something and distort the truth like they are so good at. Pain train is good because I choose who I share my information with. I also like how its up to me to put the information in so no mistakes can be made. I think its wrong how you have to opt out of the govt site instead of opt in. This leaves vulnerable people who are not capable of managing or internet savvy wide open to the deceit.

    • Soula Mantalvanos July 23, 2018 at 10:44 am - Reply

      As you know, I’m the same – a transparent life. But I loathe the authority given to the government’s ‘managers’ of this system to make our lives hell instead of support us. There is no place online permitted to auto opt anyone up to anything. If they want to do that, then our information should be 100% protected.

Leave A Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.