I’ve met some exceptional people online who have helped educate me about chronic pain and helped with my pain management.
I don’t hesitate to write and connect with people but only if I have a question that I haven’t been able to find the answer for. I am conscious of their time.
I also make contact if I think that I may have some information that could help others with chronic pain and I can’t manage the communication from my patient voice – I reach out to the pros.
From here we rolled… and within two weeks Lissanthea and I had skyped (I had also skyped Joletta, stay tuned for that outcome!).
People with pain have so much to do and much less time so I don’t expect that their priority would be to hunt down information in the great lengths that I go to, but I really believe if I had not been driven this way, I’d still be in a huge knot.
Some of you would be too. In fact you are one of (roughly) 200,000 viewers who have accessed the information on my site since it began.
We all are connected because of this pain thing. We all benefit when we talk.
Our online world has contributed so much to the education of pain (and other things obviously). In my case, I’ve also communicated alot of the unfair treatment an injured worker receives in Australia – another important part of living with chronic pain.
But back to my friends.
It turned out Lissanthea and Joletta had connected way before and really when you look at the three of us, you’ll find a common denominator – the lived experience (I first heard that term from John Quintner – yes, I met him online too!).
The three of us are a bit obsessed with the person’s lived experience.
It’s our reality! They get it. They describe it. They communicate it and they are teaching others about it in big ways.
I’m proud to say, they highly regard my Pain Train (well, actually it’s very much your Pain Train!) and we’ll be working together to test and develop Pain Train in my favorite language of all, my beloved design language!
Real lived experience + design communication + science + pro experience.
More effective pain management + less people with long term pain.
I used to sit in my design office, working with various clients on challenging briefs. To think now, Pain Train is chugging around the world connecting and collaborating with clinicians, researchers and patients, in order to make new tracks for patient self management is so far more rewarding.
We’d love you to join our conversation. You can do so by using Pain Train with your clinician or patients and then reporting back to us.
Whether you live with pain or are a clinician, you just have to read the words of my new friends.
You just must!