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I’m part of Bridge For Pelvic Pain’s Advisory Committee

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Bridge for Pelvic PainAnd I’m most honoured! To be recognised for my pelvic pain advocacy is one very exciting aspect, but to be invited to be part of a committee with a global vision, is quite an additional excitement. It appears my pain experience will definitely make a difference to others.

About Bridge For Pelvic Pain

Mission: Our mission is to connect the global community of chronic pelvic and sexual pain patients to resources, education and hope through an integrative approach. Vision: To bring hope, resources and knowledge to the pelvic and sexual pain community worldwide. Program Scope: To provide education and resources for chronic pelvic and sexual pain patients, their caregivers, and separate programs of education for the medical community-at-large.  Our program reach will include men, women, children and specialty groups including teenagers, small children and the elderly. A special focus on pain prevention and pain management utilizing an integrative approach to treatments will be emphasized. Some of the many Chronic Pelvic, Genital and Sexual Pain Conditions we support: Interstitial Cystitis (IC), pelvic floor prolapse and/or dysfunction; Pelvic Inflammatory Disease, Dyspareunia, Vulvodynia, Vestibulodynia, Vestibulitis, Lichen Sclerosus, Endometriosis, Irritable Bowel Syndrome (IBS),Prostatitis, Priapism, Persistent Genital Arousal Syndrome, vulvar cancer, pudendal neuralgia, pelvic floor dysfunction, and generalized chronic pelvic pain.

The Advisory Board

  • Fabia Brackenbury, Founder, Worldwide Lichen Sclerosus Support, web manager, education/information coordinator
  • Robert Echenberg, MD, FACOG, is a Board Certified M.D. with over thirty years of experience with an emphasis on integrative care in numerous medical settings, as well as his most recent work, founding and running a center for chronic pelvic and sexual pain patients in Bethlehem, PA., The Institute for Women in Pain. Dr. Echenberg is a founding Board Member of Bridge for Pelvic Pain
  • Jill Heidi Osborne’s BA in Pharmacology and an MA in Psychology. Founder of IC-Redwood Empire, a support group for patients in Northern California
  • Tsuyoshi Sakaguchi, lives and works in Japan. His practice focuses on helping men and women with Interstitial Cystitis (IC) and chronic pelvic pain patients in his clinic Sakaguchi Clinica Urologica
  • Stephanie Yeager  has personally experienced chronic pelvic pain. After her own road of misdiagnosis, confusion, frustration, and near hopelessness she and a team of professionals created an educational DVD specifically for those suffering from genital, sexual, and pelvic pain. Stephanie’s DVD, Healing the Pain ‘Down There’ is set to be released later this year.

Outlook for Bridge For Pelvic Pain

As we continue to expand and grow our global reach, our programs will grow as well.  For now here are some of the programs that we offer.  Please go to our ‘Donate‘ page to help us fund these programs to help chronic pelvic, sexual and genital pain patients.

  • Education– We provide education about the myriad of chronic pelvic, sexual and genital pain conditions through various mediums including this web page, social media, and with further funding we will be able to have medical experts provide education in communities around the U.S. and world.
  • Resources– In order to help global chronic pelvic pain patients globally, who often do not have access to integrative care within the countries in which they live, it is vital that we are able to provide informational resources about all of the chronic pelvic, sexual and genital pain conditions, treatment options, and a constantly updated list of integrative health-care providers world-wide. We are working to create these materials in numerous languages. Here are the languages we would like to target this year: French, Spanish and Japanese. (Is English your second language? If you would like to volunteer to help translate materials please check out our Volunteer Opportunities and send a note through the Contact form. Gracias! Merci Beacoup! Arigato!)
  • Scholarships– Medical expenses are rising in the U.S. and for those chronic pelvic pain patients living in other countries who are interested in seeking integrative treatments in the U.S. or other countries are often prevented by doing so because of the financial costs.  We would like to partner with integrative healthcare providers to provide treatment scholarships to off-set some of these costs.  We would also like to set up a separate fund of scholarships specifically for patients to attend integrative pelvic pain seminars and events.

Visit bridgeforpelvicpain.org

I will most definitely keep you all up-to-date on ‘our’ achievements at Bridge For Pelvic Pain. First and foremost will be a post to announce the availability of Stephanie’s DVD, Healing Pain ‘Down There’. After being asked to review the DVD a few weeks ago I strongly believe it will be a most valuable global resource for women.

Feedback

4
  • Soula

    Thank you dear friends for you comments and wishes. xx

  • Bam's Kitchen

    Congratulations Soula!!! You are a very strong advocate for pelvic pain resources and hope for those around the world and so delighted to hear about this committee. I wish there was something that I could do in Hong Kong to bring better awareness about this topic and share the resources available. If you need anything, please let me know. Please take care of yourself and sending lots of positive thoughts your way. Take Care, Bobbi

  • Sue Carey

    Dearest Soula,
    Many congratulations!
    Once again you are using your own experience with pain to help many others all over the World.
    I am delighted for you, and sincerely appreciate all that you do to raise awareness of this painful condition.
    I hope also that your work will not exacerbate your own pain, and that you can continue to manage your own needs.
    (I hope that makes sense; basically I’m trying to say “Look after yourself too!”)
    Love and best wishes,
    Sue xx

  • jacinta

    Congratulations Soula -well deserved!

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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