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My Recent Follow up Appointment

Author:
Pain-Management-goodies

I’ve had loads of information to process after my recent appointment with pain specialist, Dr Nick Christelis.

To prevent you all from zoning out (and my backside from having a fit), how about I spread my pain management report out a little?

If you’re in a kind of ‘I can’t be bothered, I’m over it’ and ‘don’t want to hear any recommendations or my brain will burst’ state then here’s a special post for you – Diagnosis: A Can of Worms. 

And if you didn’t read how I prepared for my appointment please do so here because I’m about to reflect on it: Upcoming Appointment with my Pain Specialist

I’ll also be back to report on how I am going a few months down the track – sooner if something miraculous happens.

On arrival

It’s always great to see Dr Christelis and after my appointments I always feel very much relieved. There is such a huge psych component to having a specialist who understands you and your health issue. Continue Reading

Takes more than an app to explain pain

Author:

Body in Mind posted this excellent research from Marina Pinheiro and Gustavo Machado about the abundant health apps out there; What App is Good for My Back?

Pulse+IT also recently posted their story, There’s a bad app for That.

There are various purposes health apps are made. From where I’m standing, my app was never a promise to solve a health problem – that’s impossible.

I’ve been asked many times why Pain Train isn’t available as an app. Pain Train currently is fully functional as a website on any desktop or hand-held device.

The two main agendas of Pain Train, are: Continue Reading

EPIc Women’s Retreat – Snow Mountain Range

Author:

Women’s Retreat for women living with pain

October 13th–15th 2017
YMCA Snow Mountain Ranch in Grand County, Colorado
1101 County Road 53, Granby, Colorado 80446

The next Women’s Retreat is in October 2017. There are only ten spots available and registrations are accepted based on availability.

The Women’s retreat provides experiential learning in a safe, serene, supportive and natural environment. Guests are free to be themselves, are heard and understood and are supported and encouraged in beautiful surroundings.

Continue Reading

Your Pace Yoga: new videos

Author:

Dustienne Miller

This is exciting. I’m republishing my post from way back when I just began to manage some yoga again.

I have maintained Dustienne’s program – albeit a small 20 minute portion – it’s still mammoth for me.

Dustienne has now produced more pelvic specific yoga videos and although I might not dare try anything new just yet, I had to share these with you all as they sound great:

Listen to your bod… go slow!


(Read the original post) Continue Reading

Making Sense of Pain: A workshop for Health Professionals

Author:
Making Sense of Pain

What sets “Making Sense of Pain” apart from other Pain Management workshops and seminars? We show you how to put this information into practice and improve your interactions with patients to ensure more positive outcomes.

This workshop is dedicated to the memory of Robert Elvey [1942-2013], a WA pioneering physiotherapist.

Information

21st Sep 2017 to 22nd Sep 2017
Time
08.30 – 4.30
Duration
2 days
Registration Closing Date
15th Sep 2017

Wyliie Arthritis Centre
17 Lemnos Street Shenton Park WA

On-site

About the venue
Lunch, morning and afternoon tea provided.

Contact

John Quintner & Melanie Galbraith
John: 0419956418 jqu33431@bigpond.net.au
Melanie: 0405963658 MelanieG@arthritiswa.org.au Continue Reading

This, is Queenscliff

Author:

I’m thinking it might be relevant for followers to see where I moved to. So, here you go – welcome to Queenscliff!

It has been a huge transition (by now you’ve heard about it) but moving from my previous (20+year) city life to this seaside town is quite a change!

Kind of forced sea-change! Continue Reading

Self Management: Acceptance, Commitment & Sacrifice

Author:
Elizabeth Banfield_written within
(Image: Written Within* by Elizabeth Banfield hand burnished linocut, kozo tissue, thread ©2017)

My sacral stim and I have known each other for a full 17 months now, so I felt it was the right time to make some comments and reflect, again, on this self management business.

Yes, the sacral stim is making a huge difference.

Now remember – I’m talking about my pelvis, my pain experience, my brain, my nervous system and my genes

Three (of my never-ending) realisations for living with chronic pain are that I have to:

  • accept that my life and I have changed – forever
  • commit to a new way of living, and
  • make the sacrifices that it takes to self manage

Chronic pain really blurs life so it takes time to realise the impact (positive or negative) of any treatment or change of activity.

Time seems shorter for me. When I compare myself with full capacity humans, I feel I achieve less and the physical cost is greater.

Not the best value! But it’s what I can get.

The Sacral Stim

The good news is: Continue Reading

God, I’ve founded a better way to do things

Author:

No, I’m not about to preach about finding God. I mean the other God – your health professional.

I’ve had many dilemmas trying to manage chronic pain.

The obvious ones relate to seeking appropriate treatment and managing life – money, bills, commitments, family, friends… if you’re reading this, you probably know how that paragraph ends.

But I’ve had an additional, personally inflicted dilemma and that’s to make something of my situation and further still, have the experience validated.

I don’t think we can control self inflicted dilemmas. In fact it’s hardly a dilemma, it’s more like a personal trait that I owned long before my injury.

pudendalnerve.com.au‘s vision is focused on positivity and I’ve adhered to my mission to help others with chronic pain (and injured workers) through my personal experience.

I’ve taken that one step further by founding Pain Train – an online health record website for people exactly like me. Continue Reading

Patient to Practitioner Access: Too Much?

Author:

It all started with emails. I bet most medical professionals felt alarmed as email communication began with patients.

Wasn’t the existing scenario suitable enough? Call the receptionist – make several attempts to get through, rattle off suitable dates, wait for that day to come around, get to the waiting room, sit, sit and then finally release that conversation that’s been swirling in your head… if that’s even possible in the allocated 15 minutes.

I’m sure some medical professionals still appreciate and stick by this scenario. I know quite a few that do.

Isn’t life short enough?

Thankfully, my pain specialist (Dr Nick Christelis), and his team have progressed further, throwing their whole practice (Vicpain) on as many social media platforms as they can. Continue Reading

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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