Dr Susie Gronski: How One Artist Used Her Hurting Strings To Stitch Back Her Life

By | 2017-04-23T12:20:04+00:00 April 23rd, 2017|Advocacy, Blog, News, Online|

I can't recommend Dr Susie highly enough. I wish I had online physical therapy advice when I felt lost, unable to commute and in need of someone who could understand my pain experience. Dr Susie really gets pelvic health issues [...]

ADF campaign: Losing Yourself in Pain Medication

By | 2017-12-11T09:16:54+00:00 March 12th, 2017|About, Advocacy, Blog, My treatment, Online|

The Alcohol & Drug Foundation (ADF) has been working to enhance awareness about the way Australians consume pain killers. My understanding of the campaign is that the ADF in no way suggests pain killers are not necessary - many Australians require their [...]

Mamamia: My experience with medication

By | 2017-07-23T11:48:48+00:00 February 20th, 2017|About, Advocacy, Blog, Living, News, Online|

Soula became dependent. "I shrunk as a person. The medication fogged my mind. I couldn't cross the road. I had to activate spell check on my phone. I didn't have the ability to think properly any more," she said.

My interview with the Australian Pain Society

By | 2017-12-11T14:10:27+00:00 October 30th, 2014|Advocacy, Online|

APS: How important are support groups for both you and your close family/community? Soula: I can’t say I feel there is much support for my husband and family/community. It’s difficult with invisible pain, it’s a similar scenario with depression, we still don’t get it. Society seems to have been given an immense right to provide their opinion (e.g. with social media platforms) and this has opened up some kind of authority to encourage opinions and much judgment. Not many tread carefully or really think from someone else’s perspective. Although we have more information accessible to us, we seem to be learning less.

‘The Hurting Strings’ wins International Film Festival Reel Health Award 2014

By | 2017-12-11T16:40:26+00:00 October 22nd, 2014|Advocacy, Blog, Events, Film, Online, The Hurting Strings|

I must sound like a broken record by now, but once again, I am left bewildered by my chronic pain journey and the contrasting experiences that go from excruciating pain to exhilaration. Above all, I feel incredibly privileged at the opportunities presented to me and so happy to be able to help others by communicating my story. I could not have done this without Theo, my family and of course Peter Lamont and Jacinta Cashen.

My Documentary: The Hurting Strings – An Artist’s Story on Pain

By | 2017-12-11T13:54:59+00:00 June 30th, 2014|Advocacy, Film, Online, The Hurting Strings|

View above or visit The Hurting Strings on Let's watch The Hurting Strings I'd like to express my biggest thanks firstly to Peter Lamont for taking this project on and for communicating my invisible message with such perfection even [...]

Texan Physiotherapist, Sara Sauder interviews me about PN

By | 2017-12-11T15:05:42+00:00 May 18th, 2014|Advocacy, Online|

Excerpt from Sullivan Physical Therapy’s Sara Sauder. Read the full interview on her blogspot. Soula Mantalvanos is an Australian artist living with pudendal neuralgia.  She runs a website  and a blog that chronicles her life since developing pelvic pain.  These mediums are helping [...]

National Pain Report, My Story: A Pain in the Coccyx

By | 2017-12-11T09:16:57+00:00 April 15th, 2014|About, Advocacy, Blog, My treatment, Online|

( The National Pain Report, my story. April 14th, 2014 by Soula Mantalvanos I begged my neurosurgeon to do anything, even to chop my coccyx off. But after getting opinions from other surgeons, he suggested not to go the invasive path as we had the option for an implant called a peripheral stimulator, a treatment that was reversible. It made more sense.