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Pelvic Pain Foundation of Australia’s Melbourne launch

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PPA Launch - Soula, Lorimer and Anne-Florence

After 4.5 years and desperate, Soula took a stab and emailed Lorimer Moseley who kindly replied and suggested she contact Anne-Florence Plante. Anne-Florence diagnosed Soula instantly.

Melbourne launch March 24, 2015

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA) Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014.  I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I’ve ‘e-met’ many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN.

Needless to say, last night I went on a magic carpet ride! Continue Reading

National campaign: nerve pain is different

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New research reveals nerve pain affects the productivity and wellbeing of Australians


New research¹ shows six out of ten (59%) Australians who report living with neuropathic (nerve) pain are missing work at least once a week due to their nerve pain. Intriguingly, this is higher than those living with other chronic pain conditions such as osteoarthritis and rheumatoid arthritis (where 43% miss work at least once a week).

Pain Medicine Specialist Dr Nathan Taylor, of Sydney’s North Shore Private Hospital, explains how nerve pain is different to other forms of pain:

“Nerve pain affects many Australians. It is often described as being more severe than other pain and lasts longer than would be expected. Nerve pain feels different and is sometimes described as burning, stabbing, pins and needles, or the feeling of electric shocks. It can be associated with numbness or increased skin sensitivity.”

Celebrity chef Ben O’Donoghue shares his story of living with nerve pain as he becomes the ambassador of a new health awareness campaign called Share Your Pain, which launches today to coincide with the beginning of the Global Year Against Neuropathic Pain².

“Share Your Pain aims to increase understanding that nerve pain feels different,” Ben said. Continue Reading

‘The Hurting Strings’ wins International Film Festival Reel Health Award 2014

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Jacinta Cashen, Peter Lamont, Reel health Award 2014Congratulations to Peter Lamont and Jacinta Cashen, who last night, won the ‘ReelHealth’ International Film Festival Award hosted by Monash Health for our documentary, The Hurting Strings – An Artist’s Story of Pain.

The film category entries were: Get Well Soon, The Journey, Your Voice, Behind The Scenes, and Mental Health and The Hurting Strings won The Journey category.

‘This category is a personal account through the journey of health. It may be a patient’s experience, or a doctor trying to implement a new technique in a hospital. It may be the career pathway of a nurse from novice to expert or the evolution of health issue in modern society.’

I must sound like a broken record by now, but once again, I am left bewildered by my chronic pain journey and the contrasting experiences that go from excruciating pain to exhilaration. Above all, I feel incredibly privileged at the opportunities presented to me and so happy to be able to help others by communicating my story. I could not have done this without Theo, my family and of course Peter Lamont and Jacinta Cashen. Continue Reading

Semi Finalist for the Doug Moran National Portrait Prize 2014

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Ms Soula With TheoAlmost 150 works were selected from nearly 1,000 entries.

2014 judges were, Edmund Capon AM OBE, and Lewis Miller, Australian Artist. Both viewed all entries and made their selection of semi finalists.

Very chuffed to be selected as a semi finalist regardless of the outcome. The portrait was flown up to Sydney for a second round of judging. She didn’t make the final cut of 30 finalists but I feel so content that Ms Soula is going to great lengths to create awareness for invisible pain. Continue Reading

Stepping into an ANZCA ad to help raise awareness for chronic pain

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Soula and Marika Silwedel at ANZCA ad filming

(Update: July 18, 2014)
Yep, I’m one in five…

Watch the full ad at: www.anzca.edu.au/fellows/foundationSoula In Anzca Ad

(June 14, 2014)

Chronic pain insists on presenting me with the unexpected.

Today, I found myself on the Kerferd Road Pier in Port Melbourne, participating in the making of an advertisement that the Australian and New Zealand College of Anaesthetists (ANZCA) are making to raise awareness and funds for chronic pain. How could I say, ‘no’? Actually, I’m ashamed to say, I nearly did say ‘no’, but I quickly motivated myself by thinking of the star of this commercial who is a 5-year-old boy with arthritis.

The amazing team for Sceneon handled the filming, and from what I gathered today, the concept of chronic pain is going to be well documented and represented. Don’t want to give away too much, just a few behind the scenes shots. You’ll only have to wait a month to see the outcome. Subscribe to the site if you’re aren’t already to receive the newsletter or post update.

To add to the ‘unexpected’ adventures of chronic pain, I finally met Marika Silwedel whom also featured on A Current Affair’s (ACA’s) Nerve Pain story the same night I was. Who would have thought two people would eventually met via a pain story and ACA!? Continue Reading

Myself, Ms Soula and my pelvic pain story at the Alliance for Improving the Management of Pain 2014

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AIM of Pain 2014 from (OoI) on Vimeo. Or read the speech below.

I would have had to be dead not to front up to an opportunity where I could present my pain journey to 180 chronic pain interested practitioners.

Was I terrified? Absolutely! But as if chronic pain hasn’t trained me for that, pushing me past all my boundaries and limits, and facing constant fears… this was going to be a piece of cake in comparison!

The Alliance for Improving the Management of Pain 2014 (AIM Pain 2014) was held in Sydney and PainAustralia were searching for a patient to tell their story. My first thoughts were; I had to be able to tell my pelvic pain story through art. Ms Soula had to be on the stage with me, and I worried that this was impossible to physically manage without Theo’s help. As it turned out all that was ok, in fact the organisers were most enthusiastic about the creative side, and the support offered to both Theo and I was 100%.

I was asked to present my story as honestly as possible and in my own words and pictures. Continue Reading

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

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