Upcoming Appointment with my Pain Specialist

By | 2017-12-17T12:37:25+00:00 October 5th, 2017|Blog, Help, Manage, My treatment, Pain Train, Professional|

In just a few days I will be seeing Dr Christelis. I’ve had one follow up appointment since my sacral stim implant. It’s not that the stim has miraculously sorted my chronic pain issue, and not that I haven’t had [...]

Self Management: Acceptance, Commitment & Sacrifice

By | 2017-12-11T11:16:26+00:00 July 22nd, 2017|Blog, Living, Manage, My treatment|

(Image: Written Within* by Elizabeth Banfield hand burnished linocut, kozo tissue, thread ©2017) My sacral stim and I have known each other for a full 17 months now, so I felt it was the right time to make some comments and reflect, [...]

Pain God, I’ve founded a better way to do things

By | 2017-12-17T12:37:26+00:00 July 12th, 2017|Blog, Manage, Pain Train, Professional|

Embracing the health care system's push for self managed care I find it difficult to sit still (pun intended), when I can see a way to make a change for the better and to help others. In the case of Pain Train, it was actually creating something that didn't even exist in the chronic pain world. The Gods we look upto had nothing to offer in this area - it didn't exist. So I repeated my story, as you did/do a few million times during the few million appointments. Exhausting! Not to mention impossible. How are patients and their teams meant to manage (you know the thought, surely God doesn't expect me to repeat myself, again!)? Yes, the Gods do expect you to repeat yourself. How else can they help you? Well, there's an easier way for both of you/us!

Pain Down There online resource

By | 2017-12-11T10:04:24+00:00 May 6th, 2017|Learn, Manage, News, Professional Resources|

You might recall me plugging the Pain Down There DVD – an extensive resource for women created by Robert Echenberg, Karen Liberi, Alexandra Milspaw, and Stephanie Yeager. Now the team have taken this a step further, turning the DVD into [...]

Pain Train – Patient health profiling

By | 2017-12-17T12:37:25+00:00 January 12th, 2015|Blog, Help, Manage, Pain Train, Professional|

About Pain Train — where it came from and why it works Download this information in pdf format Our mission Pain Train’s mission is to enable patients with chronic pain to record and store all relevant information about their pain, [...]

Who says I can’t travel?

By | 2014-06-15T08:50:38+00:00 December 3rd, 2011|About, Funnies, Living, Manage|

I know I might be clutching at straws again but at the very least 360 cities is some great distraction and very light in capacity cost. And it's great planning for next time I have some serious pain relief (like a nerve block). I'll be off like a rocket! Ok, maybe not a rocket but compared to the usual pace it'll feel like it.

Depressed? You have to be, you just have to!

By | 2013-10-14T11:07:48+00:00 November 29th, 2011|About, Manage, My treatment|

I remember friends, family, practitioners asking me how I was... "how am I?", I didn't know who I was let alone how I was!!!!!!!! I couldn't cross the street, had to turn spell check on my computer, couldn't speak from the piercing sound of my own voice bouncing in my own ears, couldn't go out, couldn't coordinate myself, I thought everyone who drove was going to kill themselves I was so disorientated all the time, and I couldn't choose between three apples if you asked me to! I slept like a dead person, had no energy, I took a huge dive into the deepest of caves. Actually to sum it up folks, I was depressed... yes, on the anti depressants. That was enough for me to see I didn't need that sort of medication. There had to be another way and I found it.