The pain

//The pain

GPADD 2018 Dealing with Addiction Conference – I’m Presenting!

By | 2018-03-16T12:52:52+00:00 March 16th, 2018|Learn, Professional, Professional Resources, The pain|

GPADD 2018 Dealing with Addiction Conference – I'm Presenting! It's a topic that needs serious attention and I'm honoured to be invited to speak and share my personal experience. My aim is to share the resources that I've found that have helped me avoid dependency, and to share resources that have helped me understand my complex chronic health issue. Education is key for both the patient and the professional in the management of chronic health issues.

Soula’s PN Weather Update

By | 2017-12-09T15:38:33+00:00 September 21st, 2013|About, Blog, Pudendal Neuralgia, The pain|

It's been a while since I posted a personal update but it's probably accurate to say that PN's weather patterns need to be documented seasonally. I mostly have turbulence, like it's sunny one day/stormy the next, or otherwise described as I take two steps forward and about 1.9 steps back. It's incredibly frustrating. So rather than report all the fluctuating details in between, it's best to leave some months go by to really figure out the progress. So now, the months have gone by and I can deliver to you, Soula's PN weather update for September 21, 2013.

Struck to the pelvis

By | 2016-09-01T15:39:20+00:00 June 10th, 2013|About, Blog, The pain|

I was walking to my studio from where I had a clear view to the sky through our balcony doors when the largest strike and thunder occured that honestly seemed like it had come through the doors and landed on our kitchen bench a few centimetres away from me. I flinched, sort of ducked in some auto response and next thing I knew I was on my knees and had fallen to the ground. My legs were so weak Theo had to lift me off the floor and we made it to the couch where I chilled, a little terrified for a while. At that point I couldn't piece together what had happened, even now I'm not sure it was all so quick, but the fact remains, I landed somehow on my knees with the back of my legs feeling like jelly unable to stand me up.

Over to Ms Soula

By | 2016-09-01T15:38:58+00:00 May 2nd, 2013|About, Blog, Creativity, Living, The pain|

I had tried to paint myself in pain but it was deeply upsetting. It would have also been concrete documentation - forever - and that's the last thing I wanted to do with this pain. Immortalise it. The pain wasn't staying. It wasn't forever, and there was no way I was going to make it mine. My artwork takes me to happy places, but of course I couldn't ignore these years of my life.

Do I dare put it in writing…?

By | 2017-12-15T15:53:55+00:00 December 31st, 2012|About, Blog, Living, The pain|

Happy... post nerve block No. 3. I'm at 5.3 weeks and have managed to walk daily a few days in a row, practice some extremely mild yoga and have a few meals out without the pathetic fire warning in my pelvis. Could it be? Could it really be? Here's hoping 2013 begins with some pain free magic. Right now, I feel like this... and I wish that everyone who comes across my website, or is a regular reader feels the same. If not, please, remain hopeful.

Take a seat… if you can!

By | 2017-12-15T15:54:24+00:00 November 28th, 2012|About, Blog, Learn, Living, Personal resources, The pain, Tips|

With Pudendal Neuralgia, or any other pelvic chronic pain issue, it can be impossible to sit pain free (let alone get away without a flare up). Of course, I'm no pro when it comes to seating, but I've learned a lot from my own experience and from listening to the 'ouch' in my pelvis. The seating I needed, was most often hand-made! (Have a look at the one my gorgeous father in law made, it's the stool with adjustable foot rest!) Although I've worn out, thrown out, tried and tested so many more seating aids, I'm showing the ones that have lasted or worked for a while. These are the ones I often resort to.

Performance ‘fit for modified duties’

By | 2017-12-11T16:14:00+00:00 November 28th, 2012|About, system, The pain, Work / System, Workcover|

Did you all hear I'm back at work part time? Much thanks to our flexible home/office setup and Theo's immense help. Regardless, how lucky am I hey? But oops, hang on, I have to correct myself. It's not lucky for me, it's lucky for the WorkSafe Agent. And I must clarify because from their point of view I didn't get myself back to work, it had nothing to do with my research, the practitioners I found, their treatment and great therapies (or my hip pocket!). Nope, nothing to do with nerve blocks and medication, but rather, my high activity levels. Yeeees, I have been a full time artist and I've been caught red-handed!!! Well I'm sick of this crap! And this time, the story isn't going to end with me feeling anxious and swallowing those bits of paper, while the Investigators excuse themselves gutlessly with a letter marked 'Private and Confidential' that they send to the WorkSafe Agent. It's going to end here, on my blog. And I'm even going to have some fun while I'm at it! ...And if you're an investigator wanting to comment, don't bother! Your comments will be deleted. As I said, this time the story ends with me.

Nominated for an award in the 2012 WEGO Health Activist Awards!

By | 2017-12-15T15:54:34+00:00 November 11th, 2012|About, Advocacy, The pain|

Best in Show Awards (Blog, Community, Facebook, Twitter, Vlog) "Awarded to someone who exemplifies the use of one particular social platform to raise awareness and make connections. Nominate your favorite blogger, community leader, facebooker, tweeter, or vlogger." Well I'm quite chuffed about this. Thanks for nominating me Theo! If you like what I've done with and feel you want to keep my nominations going, please do so via the following link...