Theo and I celebrate our 20 year anniversary today. 10 of those years we’ve had to unwillingly share with chronic pain, 5 of which, I can totally admit I was not really present. Celebrations are so hard because you can [...]
(Image: Written Within* by Elizabeth Banfield hand burnished linocut, kozo tissue, thread ©2017) My sacral stim and I have known each other for a full 17 months now, so I felt it was the right time to make some comments and reflect, [...]
Soula became dependent. "I shrunk as a person. The medication fogged my mind. I couldn't cross the road. I had to activate spell check on my phone. I didn't have the ability to think properly any more," she said.
Yippee!! Not! It’s too hard. I was dreading Christmas – like I usually do. And I’m dreading New Year’s eve and day – as I usually do. And even though I would regard myself as ‘experienced’ and loaded with the [...]
It took six full months for me to feel I was ready to have my follow up appointment with Dr Nick Christelis after my Sacral Stimulation Implant. I got a few ticks at the appointment: Device incision healed Leads incision [...]
My new stim’s changed everything. I’m grateful. Can you imagine if the whole process (from trial to permanent implant) hadn’t change anything? In addition to the stim changing everything, I’m living a whole new life that Theo and I attempted [...]
And I'm most honoured! To be recognised for my pelvic pain advocacy is one very exciting aspect, but to be invited to be part of a committee with a global vision, is quite an additional excitement. It appears my pain experience will definitely make a difference to others.
Permission granted and now it's back to reality! Or is it possible I never really left my reality? As if anyone can leave chronic pain behind and really have time off! I'm going to post my brain's two conflicting versions: 1. Crap thinking out-of-the-way first version..